Hi,
I am new to this forum.
My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
als
back
bed
coping
cough assist
diagnosed
feeding
feeding tube
fingers
go away
guilt
hours
insurance
life
love
meds
money
reading
story
suction
trach
vent
work
My trache was installed six weeks ago and changed four weeks ago. It is a soft seal cuff model that comes with an inner cannula. However, the inner cannula was not installed in the hospital nor was I given any instructions regarding it. Wondering if lack of an inner cannula might have some...
For a few days now, my wife wakes up every morning with a swollen upper lip. She has a trach for more than a year now, so there's nothing touching her lip during the night.
I wonder if anyone else has a clue about this, there seem to be no other symptoms (i.e., not swelling in other places, no...
Hello all,
I have never posted here, but certainly have used the forums for getting advice for everything! I appreciate everyone here who takes the time to help those with ALS and us CALS. My husband was diagnosed in Nov. 2013. Limb onset at 48 years old. He's done pretty well for someone...
I have numerous supplies to give away...
-Foam Trach Ties
-Shiley 6 inner cannulas
-14 gauge suction catheters
-Suction tubing.
-Sterile gauze trays
-Trach care kids...so many trach care kits
-A humidifier for Trilogy vent w/several reservoirs
I am tired. My FVC is about 30. I have no regrets about waiting so long to get feeding tube. My family is drained physically, emotionally, and financially, although none of them complain. I still feel enormous guilt.
Part of me wants to forgo the procedure, enter hospice ' and be done with...
My PALS, Frank, has a trach and is in a wheelchair. I do daily sponge baths when he is in the bed. Does anyone have any suggestions as to how I can wash his hair? We do not have the ability to roll the wheelchair up to a sink (no opening below the sink for his knees). He also has very limited...
Hello
My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
age
als
bed
caregiver
dad
diagnosed
dynavox
eye
free
hoyer
hoyer lift
lift
manual
medical
power
power wheelchairs
questions
ramp
respiratory
support
tobii
tobii dynavox
trach
wanted
wheelchairs
work
Hello
My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
age
als
bed
caregiver
dad
diagnosed
dynavox
eye
free
hoyer
hoyer lift
lift
manual
medical
power
power wheelchairs
questions
ramp
respiratory
support
tobii
tobii dynavox
trach
wanted
wheelchairs
work
I just spent 4 days in the hospital with a collapsed lung and the worst part was a sore butt from the mattress!
It started with the sniffles and a scratchy throat. I went to the doctor to see about an antiviral which they recommend right away for ALS people. Turns out that all there is is...