trach

  1. NvrGiveUp

    back from a long absence

    Hi everyone. Sorry I've been away so long. Things have been pretty tough with T. Her breathing is shallow and the doctor wanted her to go on a trach/vent ASAP. She left for Brazil to see her family and friends on Christmas day (I went a couple weeks ago and just got home today) and she was...
  2. P

    Trachs & Showering

    How do most people with ALS get showers and such? Do you have modified bathrooms with special chairs? How are your bathrooms set up? Do you take bed baths? Are you able to Shower with a trach? I've heard conflicting reports on all this so I thought i'd ask people that are in similar...
  3. Z

    New to group

    Hi! I am new to the group. My husband, Mike was diagnosed in December of 2007. The only symptoms that he has are the respiratory. He takes 4 breaths in 5 seconds. They told us he should be thinking about a trach soon. Has anyone else contacted ALS in the respiratory first? The doctor told...
  4. C

    Memorial Message Read for Husband

    Hi Everyone, Just wanted to share this with everyone. This was read at my husbands memorial service on 11-14-07 before releasing the doves at the graveside. This ALS is the beginning of a journey of many changes, and challenges. This disease is a thief, stealing your ability to walk, to hold...
  5. C

    Mucous Plug Blockage In Lung

    Hello Everyone, Just to let you know I lost my husband to ALS this past Sunday at 8:40 P.M. Never have heard of a muscous plug blockage by anyone until the time of his death. He did tell everyone he was having trouble breathing after his trach operation, in the hospital, and when he came...
  6. C

    Need help with trach care at home

    Hi Everyone, I am coming to the source of knowledge for help in caring for my husbands trach. He finally decided to do the trach with his Pulmonetic LTV 950 Ventilator. However, we need some do's and don't from those that have experienced the tracheostomy. I feel privledged to know about...
  7. C

    My Mother So Far

    Hi, I posted a message the other day without actually introducing myself because I wanted to comment on the topic but didn't have time to go into details about my mom's history. Just a year ago, she started having problems picking up her feet, and she would trip and fall occasionally. We...
  8. J

    Trach /feeding tube decisions

    Hi everyone, I just found this group. My dad was diagnosed with ALS about 10 months ago and he is getting to the stage where he will have to start making decisions about getting a trach and a feeding tube. I’d like to hear how other people made these decisions. How did you weigh pros and...
  9. C

    Non Invasive Ventilator

    Hi Everyone, Has anyone tried the ventilator with a mask? Husband is doing well with this type of volume ventilation so far. However, was wondering if anyone else has tried this procedure over the invasive trach/ventilation. If this does not work as the disease progresses there is always the...
  10. N

    ventilator breathing circuit

    Hi All We have finally returned home with my mother on Trach and ventilator. It was an obvious decision for us as we did not see any other way. If you or your loved one is on a ventilator please let me know at which level have you put a bacterial filter and how often do u change it. Also let...
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