My fiance' was diagnosed one week ago today! UGH! I am reading like crazy and realize I will have a medical degree soon! I sure need one to understand everything! Its difficult when what works for one doesn't work for another. How do we know what is right? When pALS are losing muscle how is...
I wanted to share something that is helping me regain my health and strength after my caregiving. It is nutritional cleansing. It is an easy to use system that provides all needed nutrition and helps you clear the toxins, oxidative stress, etc from your body. There are different retailers out...
I have read the stickies and appreciate all of the knowledge on this site and the people here who are so helpful. Thank you for organizing this.
I've had symptoms for 2 1/2 months. I have an EMG this afternoon. Concerned bc my calves, mainly my right one, have been twitching this...
There is a show tonight on CNN called "The truth about Toxins"
I thought some PALS might be interested in this show as I've seen from the previews that some include foods/household items that are neuro-toxic.
Here is the preview of the show:
The truth behind toxins - CNN Video
So I wanted to post this because I've been hearing about and reading about detoxing as a way to slow progression.
On the site healingals.org there are a number of stories of PALS who claim to have reversed als. I don't know how many of those have a validated dx, although I do know that after...
I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...
ice bucket challenge
motor neuron disease
A group of researchers has discovered how the tetanus neurotoxin enters the nerve cells. Furthermore, they believe the pathway used by the toxins could potentially be used to deliver treatments to the nervous system for other neurological conditions such as motor neuron disease.
Found this very interesting! Since I've realized my Dr. isn't very hopeful and I'm not one to just give in, I'm a fixer, I will fight for myself and others. Since so many vets and football and soccer players have gotten ALS I want to know what I have in common with them. A well...
My husband is 46 years old and an Army Veteran. He has been having multiple problems for several years such as falling over when standing still, sensitivity to bright and flashing lights, panic attacks, always forgetful, trouble swallowing, hand and arm tremors, and
random body jolts. After...
A warm welcome to everyone out there, I want to share my story with you.
I lost my Dad recently back in the end of August 2012. He was diagnosed some time around 2008. He didn't tell us, I am his 22 year old daughter and he has a son my brother who is 25, he also has two little boys from a new...