tongue

  1. B

    Possible Onset Bulbar Palsy

    Hello ALS community, my name is Bill. First I would like to say how saddening it is to read people's stories and how brave they are fighting the various symptoms of ALS or other MND's. Good luck and God bless to all of you. My symptoms actually started about 8 months ago wo even knowing it, I...
    • billw5012
    • Thread
    • als back bulbar bulbar pals clinic dentist dying emg flu heart love mnd muscle neurologist onset possible als problems respiratory running speech swallowing symptoms symptoms of als taste test tongue trouble swallowing
    • Replies: 9
    • Forum: Could this be ALS?
  2. C

    Started Hospice and have questions

    I went for my clinic visit a couple weeks ago and the neurologist suggested hospice. I've lost 18 lbs in 3 months. I knew I lost some weight but not that much. My FVC was 39, down from 41 three months ago. Both my husband question the accuracy of this reading as we've both noticed a...
    • CarolSue
    • Thread
    • back breathing clinic decline fvc gallbladder hospice morphine neurologist pain questions reading respiratory test tongue
    • Replies: 8
    • Forum: General discussion about ALS/MND
  3. A

    Back after over a year

    Hello all, My name is Ashley I'm a 27 y/o nurse. I posted my concerns in 10/2016. I had had a normal emg as per my neuro with some polyphasic potentials on my right side. I had a new emg done in 7/2017 which my neuro stated was still normal and those same polyphasic potentials on my right side...
    • Ashleymorrivera
    • Thread
    • anxiety arm back emg health ignore lump meds muscles normal emg nose phlegm shoulder swallow symptoms tongue
    • Replies: 6
    • Forum: Could this be ALS?
  4. J

    Another "Bulbar ALS?" Thread

    Dear all, Thanks to a wonderfully useful website to those who are affected by this horrendous disease. I do wonder if anyone who has been diagnosed with ALS has had the following course of events which I'm currently going through. My current situation is as follows: I am a 29 year old male who...
    • Jaycee
    • Thread
    • als als? back breathing bulbar bulbar als christmas coughing diagnosed early fasciculation ice improvement last days life lift lump neurology saliva speech swallowing tongue weakness website
    • Replies: 15
    • Forum: Could this be ALS?
  5. C

    Tongue Twitching Is this Anxiety?

    Hi, I was diagnosed with BFS 2 years ago now. I have continued to have twitching all over my body.. mostly in my calves. I was told by doctors that it was probably caused by anxiety. I tend to be a worrier about it and lately have had some feeling of small twitches in my tongue. I also feel...
    • cj5757
    • Thread
    • anxiety back bfs burning diagnosed helpful speech tongue twitches twitching
    • Replies: 2
    • Forum: Could this be ALS?
  6. A

    Difficult Concerns

    Hi all, I have been reading this forum for a few months now to try to soothe my fears, but I have never posted. Lately my concerns have grown greatly so even though the very last thing I want to do is waste your time when you have concerns far greater than my anxiety, I felt compelled to bring...
    • Airby2
    • Thread
    • anxiety bulbar diagnosed hope ice life movement reading symptoms thumb tongue twitch twitches undiagnosed wanted weakness
    • Replies: 4
    • Forum: Could this be ALS?
  7. D

    Very scared

    Hello everyone, I posted in this forum earlier this year in February about my symptoms, which I thought resembled the early stages of ALS. Specifically, I felt a sensation of weakness in my left hand that seemed like it was spreading to my right hand (I'm right-handed). My voice wasn't working...
    • dcush1992
    • Thread
    • als anxiety atrophy brain early emg fear fingers mri neurologist pressure problem problems scared speech stages symptoms tests tongue twitching update voice wanted weakness wrong
    • Replies: 9
    • Forum: Could this be ALS?
  8. T

    Help me AlS symptoms

    Im sure you guys see this all of the time but I really wanted to hear from people who actually have als. In june my tongue started twitching.. not once or twice, but 24/7 literally it never ever stops. I cant feel it twitching & i only found it because my tongue went numb. Ive seen three neuros...
    • Tiffany88
    • Thread
    • als als symptoms als? clean emg emg immediately symptom symptoms test tongue twitching wanted
    • Replies: 4
    • Forum: Could this be ALS?
  9. B

    First to go, voice or ability to swallow?

    Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
    • Brandi
    • Thread
    • ability breathing breathing issues clinic confused diagnosis dysphagia early feeding feeding tube helpful oxygen problems research respiratory sleep speech stats swallow tongue vision voice weakness
    • Replies: 28
    • Forum: Could this be ALS?
  10. Y

    Slight atrophy and weakness on one side of the body

    Dear all, please excuse me if I’m bothering you, I need an advice! So in january, it will be 3 and a half years since i started twitching.I twitch all over, even the places I don’t have atrophy. Since than I teitch 24/7. From the very beggining i noticed that some minor atrophy is developing and...
    • Yvme
    • Thread
    • ache advice als atrophy calf atrophy cals clinical denervation diagnosed emg fasciculations food foot mnd mri muscles neurologist pain pma problems reading reflex scared swallow thenar thumb tongue twitching weakness worried wrong
    • Replies: 12
    • Forum: Could this be ALS?
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