toileting

The ALS clinic suggested hospice. Hospice sent a slick salesperson. I kept saying I did not need to be sold on it. I had very specific questions. The sales lady pressed hard, trying to get me to sign on the dotted line... which is funny because my hands and arms don't work at all. Anyway, here...

Next stage is here already. Bummer. On the other hand…I see some silver linings. Krissy’s final finger has lost its last muscle, so I feed her every bite and hold her straws for every sip. Thank goodness for bent spoons, fat forks and 24-inch long straws. We look like quite a curiosity in...

So how do you do it when it is you and your PALS and no one else during the day. I am having a difficult time . I have started to use a hoyer lift to get Mom to the commode but I have to pull her pants down then wipe then pants back up. I am so sore and so tired. I have been crying all day. The...

Hi ...I am new to forum and need your help. My boyfriend was diagnosed with ALS in Aug of 2009. I have reached a point where I feel I don't know how to take care of him or what to do next. He no longer has use of arms, hands, can stand with help, can't eat (does have PEG tube) although...

We are moving to a different level, and I don't know what I'm doing. Is there no place to get some training? How do I get a toileting sling under my 250 lb. husband by myself? He can't be rolled over, and he can't keep it on all of the time because it causes pressure sores. How do I get any...

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Toileting is becoming quite difficult. When she has to have a bowel movement, there is very little notice. The transfers are becoming increasingly difficult and taxing on my pals. She does wear a diaper, but it's used as backup only. And the bathroom that is available for her is quite small...

my mother can no longer be lifted with out 2 people to the toilet. we have a hoyer but because of her bowel incontience we cannot use it for toileting. does she need to go to nursing home now? is there anything I can do. I am a 52 year old woman and I am alone alot with her. we are cleaning...

Hello, I have looked back through threads and can't seem to find the answers to my questions. My hubby has Bulbar onset ALS; now unable to walk or help me help him stand up. My question is in regards to clothing (or the lack of). Two weeks ago, I was able to help him stand up from the toilet...

This is my first time here and I hope you can help! Intro: I’m a part time caregiver for my dad who was diagnosed January 2008. He is 66 years old and completely paralyzed now but can still move his head from side to side. He can make sounds but I cannot understand him anymore, and our...