1. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  2. K

    Howdy, and Here's My Story

    Hello all, I've been combing the forums for a month or so, mostly because I'm not sure how to manoeuvre around here. I've been learning a LOT from forum, so many helpful people, and especially I've been feeling like I'm getting to know some of you, if not by actual name, then by user name...
  3. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  4. C

    Altering Pants?

    Hello, I'm in my power chair full time and have read about altering the crotch/backside of pants to make toileting easier. Before I start cutting away on my clothes (I'm having a hard time with this one...) I think I will start with some yoga or sweat pants. Any suggestions or ideas to...
  5. C

    A sling for freestanding overhead lift system?

    I have an overhead freestanding lift system. As it turns out it is too big for the bedroom at 11.5 ft. long. The problem is that the feet/legs are 4 ft wide and no matter where we put it, it will block a doorway. We've decided to cut it down and reassemble a shorter length for our bedroom and...
  6. C

    Hello – new member, diagnosed 2011

    Hello Everyone, Although I have had ALS over five years, I am a new member to this forum and would like to introduce myself. I was diagnosed back in February 2011. Physically, from the chin up, I am doing well. I can still speak – albeit softly – and eat which I am very grateful for. South of...
  7. S

    toileting slings

    I just wrote a long post about toileting slings and lost it. Briefly, I need to purchase a sling to use when helping my PALS with toileting and daily transfers. He can no longer help me when moving from chair to chair, chair to bed, or chair to toilet. I purchased two slings and both hurt him...
  8. F

    Loss of appetite

    I am hungry in the morning and have a bowl of cereal, and I have a sandwich for lunch. My problem is dinner. I don't feel like eating any food for dinner. Sometimes I take one bite and then stop eating. I actually feel nauseous at the thought of eating. This makes my CALS, my husband, very...
  9. J

    best lift for toileting

    Need advice on any equipment that will help a caregiver with toileting.
  10. M

    Trouble with transferring

    My mom has progressed a lot within the past couple of weeks. She went from being able to get to the bathroom on her own with a walker to being able to only stand and we would push her in her wheelchair and help transfer her onto the toilet. Now she is not able to stand anymore and my sister...