Hi Everyone,
I am physically sick at the the thought that I may actually have ALS. I feel like I'm living in a fog, and the more I read about ALS the more I see myself, and the more terrified I become. I am only 37 years old. My beautiful baby is only ONE, the thought of leaving him or of...
Hello everybody,
Let me open my introduction with how much I admire your ability to comfort each other with constant and genuine reinforcement.
Sadly, I only found you yesterday. Your help would have been appreciate along this scary bewildering and extremely lonely journey. The good news is I...
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Hi, my first post, so not sure if these have been answered yet. Not fully diagnosed yet, but feel like it's inevitable. Checked the family tree and it's familial. My Grandmother died when she was 48 (my mother was 15). My mother died when she was 59 (I was 15). My sister died when she was...
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Hello all,
I thought it would be interesting to know each of your stories (again) on some, but this time in context from start to present, possibly timeline, highlighting important times, such as symptom to diagnosed (or un-diagnosed) to current.
I'm particulary interested in:
1) Symptomps...
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Hi,
I'm a 41 yo in CO. A short timeline:
Jan 05 - Symtom onset (thumb weakness) followed by hand and arm atrophy.
Aug 05 - Dx'ed with ALS Aug 05 by local Neuro (1).
MRI found herniated C5-6 with root nerve & cord compression which, at the time, was considered the source of symtoms.
Sep 05 -...
I have been going to several neurologists for 3 1/2 years now. I have had two EMGs - the most recent in Jan 2005 on my right leg that was clean. My symptoms started two and a half years ago with muscle cramping and slight fatiguing of my right arm. At times I could barely type without...