time to s

  1. Vincent

    What have I done?

    My last day of work was last Friday. I'm still able to get around on a couple of AFOs and a cane, so it doesn't seem like it's time to stop. My arms seem to be holding up, little issues with dexterity, but over all OK. The deciding factor came down to fatigue. I work all day and I sleep till...
    • Vincent
    • Thread
    • denial disability family fatigue insurance life sleep time to s work
    • Replies: 22
    • Forum: Newly diagnosed
  2. F

    Hi Everybody

    I was diagnosed with ALS this March. I've been visiting the forum and feel as if I know you a little bit already. I'm not very good with computers (iPad), but decided it was time to stop being a spectator and try to participate. So I'm with you officially now, to be strong against this...
  3. W

    New here with some UMN disease, possibly PLS?

    Hi everyone. I just thought I would register and say hello. I've been reading and getting lots of useful information and links and thought I would introduce myself. First of all, we are not sure exactly what is wrong with me yet, but it some kind of upper motor neuron problem. For about a...
    • wendya432
    • Thread
    • ability advice ankle atrophy back baclofen clonus diagnosed emg emotional lability exercise fasciculations fatigue foot headaches hip information lead muscle muscles neurologist neurology new here night pls problem reading reflex spasms swallowing switch time to s trouble swallowing umn wanted weakness wrist wrong young
    • Replies: 25
    • Forum: Primary lateral sclerosis
  4. J

    Driving?

    Just another question, at what stage of ALS did you decide it was time to stop driving. I just went from a stick shift to an automatic because of left foot problems with shifting. Thanks.
  5. H

    Coming out of denial!

    Yay me! I finally called to see the ALS specialist! Yesterday, I figured out I sprained my hand during one of my many falls last week. Idk which one or how I did it. :razz: So, last night my husband said I'm to stay in bed for 2 days to prevent further injury. I just thought it was kinda funny...
  6. S

    Permobil C300 Power Chair Tilt Recline Seat Lift Legs, Loaded

    My father used this chair and while was not an ALS patient he had a brain injury which basically paralyzed him for the past 14 years of his life. He past in Sept 2011 and I am not sure exactly what to do with the items like this Permobil chair so I am listing here hoping it could go to good use...
    • Squidly
    • Thread
    • als back battery brain brain injury chair father life lift pain paralyzed permobil power power chair power wheelchair questions time to s
    • Replies: 4
    • Forum: Used ALS equipment for sale
  7. marypat

    Hi to all,

    Hi to all, I’ve been visiting this forum for awhile but haven’t posted anything before. As it is January and most people have their resolutions it’s my month of firsts…first time I admitted I’m not going to drive again, the first fall..the first time I used a cart to shop with….the first time I...
    • marypat
    • Thread
    • advice als bulbar clinic dying hope kids life ohio questions research support time to s trial wheelchair work
    • Replies: 16
    • Forum: Off topic everything
  8. J

    Where to Begin

    It is very difficult to write this post. I am one of the caregivers who has complained about how much ALS changed my life. Well, it has really hit home now. My PALS lost his 2 year 4 month battle on Sunday August 14th. This last week has been filled with all those things associated with...
    • jwife
    • Thread
    • als breathing caregivers death family health heart home health care hospice information life love morphine night pain planning questions test time to s wanted
    • Replies: 30
    • Forum: In memory of
  9. T

    Just Diagnosed With SOD1 Mutation.

    Hey there guys this is my first Post , wouldn't have a clue where to put it? so here it is , Today after waiting like 5 weeks , i finally received my results back from the Pathology in Melbourne Australia , i Live in Hobart Tasmania Australia , Its confirmed that i carry the SOD1 Mutation...
  10. Tokahfang

    How does UMN speech impairment progress?

    In November I started to lose my ability to sing more than a few songs, and reading aloud to my niece got more tiring. Then I lost my singing range, once a first soprano, and anything over alto would leave me hoarse for a few days. That was when I realized what was happening, but it wasn't very...
    • Tokahfang
    • Thread
    • ability bulbar early family information life progression questions reading slow progression speech speech device time to s umn voice
    • Replies: 19
    • Forum: Primary lateral sclerosis
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