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  1. tripete

    Snowy Night

    I finished a new oil painting - it took 6 months but time to start another one
  2. S

    Student life vs Caregiver life

    Hi Guys! This is my first time ever on a forum so I would definitely appreciate any kind of guidance! So what brings me here...I'm a 23 y/o caregiver to my 51 y/o mother. She's been a PALS for about 4 years now. There are 6 of us in the family but my little sister and I are the main...
  3. preacherman

    Please Just Roll Over and Die...

    My wife and I have recently moved and we have had to change clilnics. I have not been impressed with the new clinic and have been trying to figure out what has really been bugging me about the new set of doctors I am seeing.... The old clinic I went to, I shared one of my hobbies with the head...
  4. M

    Feeling overwhelmed

    My sister and I have been caring for my mom with ALS since November. To give some context, we are 24 and 26. Our dad passed away 5 years ago so it's just us. We have no other family to help. We had gotten into a good routine but just recently it seems like things have gotten worse. My mom has...
  5. Jackfishem

    Feeling Helpless

    Mom has FTD-PPA, ALS, and COPD. She started antibiotics this week due to an upper respiratory infection. Last week, she would wear her bipap to sleep and for a few minutes during the day on occasion. For the past couple days, she's used the bipap pretty much all day. Even with the bipap on...
  6. A

    Little blessings

    Wow! Today I managed to pick a box of figs, and water some seedlings that have just emerged. Feels like a wonderful day! Oh, and I walked one of our dogs. Today seems so much more organised. Don't know why though. Some days ,I feel as if I am going around in such an empty space. I often feel...
  7. starente15

    Falls with compromised diaphragm

    Hello everyone. At the last support group I attended, I spoke to someone with respiratory onset about what would happen if a person who's diaphragm is affected were to fall. Their wife gave me a checklist of 1) roll them onto their side, 2) get a pillow behind their back and head and 3) get...
  8. B

    talking...

    Well I think it might be time to stop trying to talk. Was out and about the other day and tried to respond to a simple greeting from a passerby. "How are you today?", I asked. The response I got back was, "I didn't understand you, are you deaf?". Oh well, I understand. I've been asked by...
  9. MaxEidswick

    driving

    Darlene Long 10 hrs Most of us can remember the euphoria we felt when we passed our driving test and suddenly, the world's door was opened. Freedom. Hello World, here I come! Maybe all those teenage hormones flowing heighten those feelings of freedom, but being able to get yourself from point A...
  10. starente15

    Questions for Clinic Visit #2

    Good morning everyone. We have our second clinic visit next Friday (was supposed to be in February but was moved up due to what seems like quicker progression). I was wondering if there were any questions I should be thinking of. I go with a list to ensure we get as much info as possible but...
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