therapy

  1. M

    Emg

    My previous threads are old and have been locked so that is why I’m opening a new thread. A couple months ago I did get an emg and based on the results my neurologist came to the conclusion I have cramp fasiculation syndrome. The reason why I was given that diagnosis was because to him I didn’t...
  2. E

    Weight gain

    Hello beautiful souls, Since symptoms began, my father has been steadily gaining weight, especially over the last few months as spasticity worsened. He tries to stay active by going to physical therapy three times a week and by pedaling at home in the electric bike, but he has gained at least...
  3. P

    Clear EMG "always" shows no ALS?

    Hi there. I'm 27 years old, female an environmental engineer. On September, i had weakness on my left arm and then twitches under my foot. Neuro ordered an EMG test, i had EMG on november 9th. Results was clear, i started psychological therapy but i hadn't use drugs, i take only the therapy...
  4. T

    Resources for teens with a parent with ALS?

    Being a teenager these days under normal circumstance is hard enough (for example, I have a senior and we are in the throes of college acceptances/rejections/etc.), but add having a parent with ALS to it.... Aside from therapy, what has worked for your kids? Does a forum like this exist for...
  5. lgelb

    Biogen picks up Ionis SOD1 treatment option

    This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...
  6. E

    Speech Therapy for PLS

    I posted this on the general forum, but thought it was more appropiate for this site... Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is...
  7. E

    Speech Therapy for PLS

    Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is unaffected yet and his lung function and breathing are perfect as by the latest tests, done...
  8. jethro

    Therapy with ibudilast - on the road again

    hello, i posted in august that my attempt to import ibudilast legally failed due to customs etc. finally, i got a drug (to be true, i got generic) via irc.bio. i prepaired it, so i started day before yesterday. 2 x 50mg/day. no side effects in a 2 days :-) it will take app 6 months to see...
  9. J

    Struggling but trying to be realistic

    I have talked myself out of posting here 100 times. I have read all the stickies and am well aware of what they are saying and am trying to wrap my head around believing them. With that being said here is what is going on with me 33 yr old female with a precious 1 year old girl. 6 mos ago I...
  10. C

    Another neuro update

    Hi all, Just wanted to post a new update. I meet my neuro the other day and he did all the tests: reflexes, walking on heels and toes, look into my eyes with flashlight, holding my arms in front of body. Did no strenght tests at all and that is concerning since on of the symptom is my shoulder...
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