testing

  1. E

    Is Lyme a scam?

    Hello everyone, We live in a zone where cases of Lyme are frequent. Recently, some people of my town diagnosed with MS / Parkinson's were treated with antibiotics for Lyme and improved. One of them suggested my father see a physician with expertise on infectious diseases. I was extremely...
  2. B

    Thank you all

    I want to say thank you to everyone for all of your assistance and comments. I'm sorry if we bothered any of you I understand that you are dealing with this illness as best as you all can and I admire your strength. If anyone cared for the update we saw our final neurologist and he said no Als...
  3. K

    Sorry to find myself here but glad I found you

    Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...
    • Kafka
    • Thread
    • als atrophy balance breathing bulbar denervation diagnosed diagnosis emg family foot hyperreflexia life neurologist onset pls progression questions speech swallowing symptom symptoms test testing tests
    • Replies: 4
    • Forum: Newly diagnosed
  4. S

    worried for my husband

    My husband lost strength in his left hand and is unable to touch his thumb to each finger as of two weeks ago. He has developed continuous muscle fasciculations in both of his upper arms and now both of his hands. He does not have any pain, tingling, or numbness. Just "stiff" fingers and...
    • sjwong
    • Thread
    • als early emg fasciculations finger fingers husband muscle onset pain testing thumb weakness worried
    • Replies: 11
    • Forum: Could this be ALS?
  5. P

    Symptoms need further exploring?

    So I've had a slew of variety of symptoms over the years first being on and off all over muscle twitching. The started about two years ago and subsided probably in a matter of a couple of days. Always seems to come and go. I was just seeing by to neurologist for headaches and some other...
    • Pamhill83
    • Thread
    • als? ankle arm bed cramping fell headaches mri muscle muscle twitching neurologist night onset second opinion spasms symptoms testing thumb twitching
    • Replies: 19
    • Forum: Could this be ALS?
  6. P

    Scared this Holiday Season

    First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
    • Passive4356
    • Thread
    • ability advice anxiety back book cals children cold emg eyes fingers holiday life muscle pain paresthesia running scared stress symptoms test testing twitches twitching weakness weight loss
    • Replies: 3
    • Forum: Could this be ALS?
  7. L

    I have a feeling this could be ALS

    Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper...
    • Lita31
    • Thread
    • als als? breakdown breathing breathing issues could this be als female muscles neurologist night oxygen pain problems sleep swallowing symptoms testing trouble swallowing twitches weakness worried
    • Replies: 17
    • Forum: Could this be ALS?
  8. A

    Conflicting emg and polyneuropathy axonal type

    First let me say this site and the folks who help are amazing. I hope I have that much empathy in charity in me. Question. I have had two conflicting ncs / emg’s - both ncs showed sensormotor poly neuropathy of axonal type. But here is the carrot. First emg showed increased insertion...
    • Agtoro
    • Thread
    • als confused emg hope insertion mnd neurologist test testing twitches twitching
    • Replies: 11
    • Forum: Could this be ALS?
  9. G

    Home Automation w/ Axial Server & Amazon Alexa

    I worked with Team Gleason on testing their Home Automation offering: Home Automation | Team Gleason | Steve Gleason | New Orleans Saints And was asked to document my experience in a blog post. But there's a wait while the new website is built, so I thought it both useful and worthwhile to...
  10. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
    • Tomannie11
    • Thread
    • als als? back bulbar bulbar als bulbar onset eating emg heart hyperreflexia ice meds movement mri onset swallowing symptoms testing tests weakness wheelchair
    • Replies: 15
    • Forum: Could this be ALS?
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