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  1. A

    questions about possible als

    sorry guys , have been having unsolved neuro issue for 10 months, now getting sent to mayo clinic in rochester in 2 weeks. So i have had musular twiching in toes (really arch of left foot) that causes my toes to move, then it moved to my left leg, then moved to left eye, mostly over last 8...
  2. D

    fear als

    Hi I'm an Italian living in Germany so I apologize for my English. I'm afraid of having Als. I am now 13 months that I accuse tiredness and 10 months with the fasciculations. I seem to speak badly because it seems I can not scan well the letters like R. I tried to register reading but not known...
  3. MJALSWarrior

    Determining Familial ALS

    I was recently diagnosed with Onset Bulbar ALS. The question came up about history and I told the Neuro that my grandfather, a cousin and 2 of my grandfathers nieces had it. My understanding is that to connect it as familial my grandfather would have had to had a genetics test for them to be...
  4. E

    Nerves vs ALS

    I've been told after a very long summer of test etc That I have ALS. I've always had really bad nerves and as you can imagine after this news their not any better. All I've lost so far is my use of my left hand . My problems seem to be wondering if the biggest things I'm feeling right now is...
  5. P

    NEGATIVE genetics results?

    My wife is in the area of probable ALS. Her first symptoms were late 2015 and 2.5 years later she can still walk with assistance, speak, swallow, and breathe nornally. She was on lunasin for a month and seemed to improve fine motor movement and in the past responded well to high dose...
  6. M

    I am so worried

    Hello, let me tell some background information. My mothers mother had ALS and was diagnosed in her late 60's. Her disease started from the throat. Her two sisters died of this disease too. My mother had als and was diagnosed at 53 years old and her disease started from her right leg if i...
  7. L

    Dazed and confused

    My husband Jim started losing his voice over 2 years ago.We have seen numerous doctors. Next he started having swallowing issue's We saw 4 neurologists and had many test.The last doctor ask about military service.He was in the Air Force.We have been lucky to get so much support so fast.The...
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