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  1. H

    Need some help on weight gain and stomach collapsing when I lie down

    Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...
    • Hammerheadzed
    • Thread
    • advice als bed breathing bulbar bulbar als choking clinic constipation denervation diagnosis diet dysphagia emg food meals nausea neurologist oil problem progression sleep swallowing test wanted
    • Replies: 2
    • Forum: Newly diagnosed
  2. B

    frighten and foolish back

    my last thread was closed I have been going round and round with notorious twitches and feet achy weirdness for a while below is time lin nov16 bilateral feet feel strange jan 17 emg diagnosed with neuropathy with normal ncv may17 emg diagnosed with sensimotor poloneurapthy with normal ncv aug...
    • Becazican
    • Thread
    • als anxiety back bfs bulbar diagnosed emg fasciculations ice life mucus neurologist onset problem research sad scared swallow swallowing symptom test tongue twitches weakness
    • Replies: 11
    • Forum: Could this be ALS?
  3. M

    Does this sound like possible ALS?

    Hello all, I am new to this forum and I will be honest that I’m feeling quite anxious. I’ve been experiencing some symptoms that I’m worried may indicate ALS. I will preface this by saying I’m 24 years old and I’ve had neurological problems since I was 12, so I am no stranger to seeing a...
    • Mayag
    • Thread
    • age als als? arm weakness botox diagnosed early finger foot neurologist onset pain possible als problems shoulder symptoms test tongue tremor trip twitch twitching weakness worried
    • Replies: 2
    • Forum: Could this be ALS?
  4. I

    Does ability to breathe occur in PBP

    I was just diagnosed with Progressive Bulbar Palsy about a month ago. Was told by the ALS Clinic that my limbs were good and might remain that way for another year or two. Within this last month, though, I seem to have more of a problem breathing. This is more when I try to breathe through my...
  5. M

    Concerned , been sent for tests. What do they mean?

    Hi everyone. I just want to start by saying that I don’t want anyone to reply that it takes a lot of effort to do so . Save your energy. I don’t want to be a drain on anyone. With that out the way, I not so long ago posted a thread that I asked to be deleted as I felt my concerns were...
    • Mick7979
    • Thread
    • age als atrophy back concerned cramping fasciculations muscle neurologist pain scared test tests tongue tongue fasciculations voice weakness
    • Replies: 7
    • Forum: Could this be ALS?
  6. S

    Flaccid in a week?

    Hi, I have been to Neuro several times and have an appointment at a specialist this week. I have always had tight spastic muscles- I see signs of slight atrophy symmetrically. Both foot arches calf’s. But I am wondering if it is normal to go from spastic to everything going to mush in a week...
  7. L

    Grandchildren

    My young grandson called the other day to wish me Happy Birthday. He asked me how old I was, and I told him 72. My grandson was quiet for a moment, and then he asked, "Did you start at 1?" I was in the bathroom, putting on my makeup, under the watchful eyes of my granddaughter, as I'd done...
  8. A

    Help with diagnosis

    My mother is having a very hard time getting a diagnosis. She is 71 years old. Tingling in her legs and fatigue with even one block of walking in her legs for the past three years. Two years ago she started having difficulty clasping a necklace and now there is some atrophy between her thumb...
    • azlat
    • Thread
    • advocate als atrophy breathing diagnosis early emg fasciculations fatigue finger getting a diagnosis ivig neurologist supplements swallowing symptoms test thumb
    • Replies: 3
    • Forum: Multifocal motor neuropathy
  9. K

    Received 95% Likelihood Diagnosis 1/25/18

    My daughter started with stiff calf muscle, inability to touch heel to ground and she trips frequently. She has had EMG on legs only, MRI of head and neck. She has over active reflexes much more pronounced in her legs. Dr at University of MN says 95% chance of ALS, with more certainty if she...
  10. C

    s ared about bulbar onset

    Hi First i would let you know english is not my first language. I read a lot of your post like everyday everytime and i totally support you. My story is 1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
    • chrismontreal
    • Thread
    • abdomen arm atrophy back bulbar bulbar onset burning crying eating emg fasciculations food mucus muscle nose onset scared story support symptoms test tongue wrong
    • Replies: 17
    • Forum: Could this be ALS?
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