technology

  1. C

    Steve Gleason Documentary

    Last night in San Francisco I had the privilege of seeing a screening of a new documentary of Steve Gleason's life with ALS and his success in fighting for access to speech technology for all. The man's determination and commitment to making a difference for PALs is truly inspiring. I also...
  2. K

    Tobii I-15 Computer with Eye Gaze Technology

    This computer has been used less than 20hrs. It comes with everything that is pictured. The Tobii I-15 has Windows and EyeGaze communication software that speaks for the user. The screen is 15' and can sit on a desktop or be mounted with the equipment. Asking $5,250 and we will pay the cost of...
  3. dkcarl62

    Speech, yet again

    Please indulge me on yet another post about speech. I have limb onset and my speech has been slowly declining for about a year. Started out that I spoke slowly but still clearly. Then I got to where I didn’t feel I could talk on the phone, as I was too hard to understand. Now it seems that...
  4. S

    New member

    Hi - I've been reading the forums for some time but only posted once. I know the support offered here would be helpful and thought I would introduce myself. My husband was diagnosed in the fall of 2014 and is dealing with some cognitive decline as well as the physical losses this disease brings...
  5. Nuts

    Clinic and Diabetes Update

    Whew, this disease never slows down, does it? the next installment in the saga of rising blood sugars has Matt's glucose levels rising overnight. The Endo asked for 3am readings, and we've learned that his numbers drop very very low and then rise, which means his body is eating itself, so to...
  6. F

    Feeding Tube Formulas More Susceptible to Clogging?

    Hi All! I am new here and am hoping that you can all help me out! I am a laboratory researcher for a medical device company. We recently started working on a technology for feeding tubes that we are going to test to see if it helps reduce the incidence of clogging. To test it, I need to find...
  7. C

    Best Adaptive Tools

    Quite awhile back, our dear Max started a thread about some of the best adaptive equipment and gadgets. Since technology has changed in the last 18 months or so, I thought it might be a good idea to revive the thread. We have several gadgets that have really made our lives easier and they...
  8. C

    Need HELP with Eye Gaze Technology!

    Hello, My sister has ALS and was given a laptop with an eye gaze system. I can get the eye gaze to work for me but not her. My sister is mostly in a hospital bed and getting the lap top set up in front of her on table at a level that it detects her eyes is very difficult. Due to the angle of...
  9. lgelb

    Equipment sources/places to donate

    Besides the usual suspects (MDA and ALSA), many communities have mobility closets of some kind. Here is one such list by state. For technology items, there is a separate list. For used BiPAPs, this is a good starting point to donate, sell and buy. Dotmed and Bemes offer other options, the...
  10. C

    In search of Tobii with Eye gaze

    My uncle in Guatemala was just diagnosed with ALS and is going downhill very quickly as there is no way for him to get the medicine (Rolutek) there in Guatemala to slow down the progression. He is already barely able to communicate and only has very limited use of one hand left. I live in the...
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