taste

  1. S

    Esophagus Problems

    Hi, I am new to the forum. My dad was diagnosed with ALS 1/06, but symptoms started 9/04. It took a while to get the diagnosis. His started in his leg as a slight limp and you all know how the rest goes. He is in a wheelchair and has maybe 5% usage in his legs but has 95% usage of arms and...
  2. E

    Edna May

    I have a puzzle ! I have read on many occasions that ALS does not affect smell or taste. I have lost my voice & have a loss of most of the foods I used to love, I was a choco- holick it now tastes awful. white bread, cake,Pastry, & many others, Does any one else have this problem. Love to hear...
  3. M

    Is this typical in ALS

    HI, I just want some advise and this seems like the place to ask questions. I wrote one other time one the "I think its over thread" but new to all of this. I'm a 26 yr old female with 2 children under 2 1/2, and a wonderful husband. I would like to know if my symptoms are typical in als and...
  4. G

    so that's what 2006 was about, huh.

    looking back, this has been a very emotional year for my family... as my aunt was diagnosed with ALS in july '06. i just got off the phone with her and while her speech is not great and getting worse (slowly, thank god)... her spirit is top notch. she's doing everything she can to fight the...
  5. D

    Brother's Caregiver

    Hello, My brother who is 44 years old, moved in with my husband and I in August of 2005. He has ALS. He was diagnosed in July of 2004. It started with a weakness in his right hand and continued from there. When he move in with us he could still walk, some, with a walker, and feed himself...
  6. MtPockets

    Constipation

    Awhile back many of us were discussing the subject of constipation. I had tried many over the counter remedies and even some prescriptions, without much consistent help. I usually went from one extreme to the other. Then my druggist recommend I try a new product that can be added to foods...
  7. MtPockets

    Another view on Ventilators to consider

    I am still researching whether or not to go to a ventilator when I need one. However, I just got out of the hospital after a 4 day stay due to a high cpk count of 1450, and my kidneys were shuting down. I had no urine all night before I went into the hospital. So I may not reach the point of...
  8. G

    Advice needed from experienced folks

    Dad is becoming increasingly weak every day. He is barely able to walk now and his back and leg muscle feel "tight". Is there any way to get relief ? One guess of mine is he is eating less due to swallowing issues and because he can't taste food well nor does he feel hungry. May be his body is...
  9. W

    Heartburn/Constipation Please Help

    Hello everyone, I hope you are all doing well and enjoying the colder air... I have some questions and would appreicate any help you can give: Dad seems to have had a really bad weekend. First of all we have a new puppy that is very good and that he loves a great deal. However, between this...
  10. L

    Ice Cream

    As I mentioned in a previous post, I am very recently diagnosed (a week ago) and have been coming to terms with it emotionally. As a longtime member of AA, I think I have a bit of a head start on things like acceptance, turning it over, and living one day at a time. It brings not only a sense...
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