taste

  1. ZenArcher

    Whiskey Tango Foxtrot

    I have to ask forgiveness up front because this post may become somewhat vocal. I read an article today online that well frankly pissed me off. I've since tried to move one but the more I think about it the angrier I get. The article I'm referring to was in the Washington Post and is titled...
  2. C

    DX'ed with Lymes Disease but still fear ALS

    I had a clean EMG visit to the neuro. My muscle velocity times were all within range of normal, and my reflexes were good as well as my strength tests. She said I had no elevated levels of ? (I forgot what its called) that would indicate NMD or ALS. All waves were positive sharp waves and looked...
  3. ZenArcher

    Advocacy Request

    Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a subject enter H.R. 5454 If it requests an Issue Area select Veterans Affairs In the...
  4. ZenArcher

    To all Pennsylvanians

    I would like to see every PA representative be a cosponsor on H.R. 5454. My representative Chris Carney is already a cosponsor along with Philip English, John Peterson and Todd Platts. I have emailed all reps that will accept email from non-constituents and ask that my reps office contact the...
  5. E

    metallic taste

    I have been an ALS patient for four years now on bipap 24/7 and have started experiencing an awful "metallic" taste and a burning sensation in my nose, lips, mouth, eyes and lungs. Has anyone else with a similar problem found anything that could help? thanks ellen
  6. rose

    Another question for those with bulbar issues

    Hi, I have have the appointment with the neurologist at Johns Hopkins set for the 14th; and have been running over in my mind all of the different problems I've been having. .. For those that have been diagnosed with ALS, has it affected your sense of taste? I ask this because I do have...
  7. I

    "Unbelievable" What is this?

    Sorry folks, I didn't mean to get off topic, but I just had to share this with you guys. I was, and still am in total shock! I am glad I am the world's worst water drinker, because I truly hate the taste of water. I am embarrassed to say that I have not learned how to cut and paste yet, but at...
  8. Sammantha

    Is Gerd/esophagitis related to ALS?

    Hi, i have been in and out of this forum for awhile. I have been diagnosed with a neuromuscular disorder. My GP basically said that i definetly have something wrong with my motor neurons but she and my neurologist feel that because of my age and my ability to still use my affected muscles...
  9. Geo

    Helpful Hints for the Day

    Try this for Cramps "Tonic Water" . I bought the Pack of small bottles. Doesnt taste very good but works . Also if your taking Vitamin supplements like Calcium they tend to stick in the throat . I bought a sml. coffee grinder and grind them up and put them back in the bottle and spoon it out...
  10. K

    Foods

    My mom has just been told she may have ALS and tho I see diff. forums here I thought this the place to ask about foods. She coughs and chokes alot at mealtimes and sometimes when it's not eating involved but one day I gave her a taste of my homemade wine and it immediately rejected. Came right...
Back
Top