Hello,
This is my first time posting and I've only been poking around for a week as it was a week ago that my Neurologist said he thinks I may have PLS. I've only had my symptoms for a year and I know that it can take many more for a definitive diagnosis. With that being said, I'm wondering what...
I’m back after nearly two years of visiting the site. I was trying to move on but my symptoms have never left. I have weak hands that show atrophy, my feet have lost muscle. My arms have have lost muscle, are weak, and clearly show atrophy on my shoulders . I pretty much have wobbly muscles...
Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
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Hi everyone,
I have been having fasciculations throughout my body (mostly in my calves and hands) since Jan 2016. I did a EMG in 2016 and the doctor said it was benign fasciculation syndrome. Now to 2018, I was recently diagnosed with Celiac Disease (gluten) and have been experiencing more...
Hi! I have been a lurker here for awhile now and decided it is time for me to post. Please do not be afraid to tell me I am crazy or that I don't have a reason being here, but I wanted to address my worries. I know you all are battling, know or have lost someone with this terrible disease, and...
Hello all, I would like to thank anyone who has the time to respond. For the last 2 years ive battled I fear that I have ALS it started two years ago when I started twitching everywhere and felt an odd sensation in my right thumb and fingers of course I Google it and thought I had ALS and...
I'm 33 year old female, perfect health until now.
Months ago, very occasionally I started feeling weakness in my left hand, not able to grip. I didn't pay much attention, until it got worse. My left hand is very weak now and unable to pick up anything heavy, also fingers move slowly. It's...
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Hi all,
First, I want to say that I have the utmost respect for the people here who are battling this awful disease and for their caregivers. I pray for a cure and peace to all of you. I think it is selfless that you give your time to a forum like this.
I have been having some concerning...
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Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues.
This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction.
I then saw a...
Hi all. Im a 22 yo male .So my symptoms started 2 years ago. Began with bodywide fasics, countless areas of perceived weakness but mainly in my right thumb. I've been to 4 different doctors and had 2 emg's done and the only abnormality was a spot of "irritation" in my right thumb. However the...