I had posted earlier about denial among family members about my PALS ( 79 year old woman diagnosed in 2013 with ALS). I took her to the clinic yesterday. Her FVC is 36. She has decent strength in her hands and forearms; voice is strong; swallowing is worse. The neurologist recommended...
All -- My mother is in her late 70's, has no ability to move her legs and has limited use of her arms, which means she has limited strength in her hands and forearms and that's it. Her breathing is okay but below 50 percent. She is only beginning to have trouble swallowing. She lives with...
Are they thinking ALS?
I presented with foot drop. Not a big deal.
She noticed hyper reflexes right side and clonus in the right foot.
Did MRIs - assumed MS. Saw some white spots but said no MS. Did an EMG. EMG was clean.
I asked for a second opinion at a teaching hospital.
She sent me...
Hi everyone, I've not been on much lately, and I wanted to share that I got a new low profile peg tube that does not have a balloon. The manufacturer does not state specifically anywhere in their literature (that I can find) how long it is supposed to last, just that it is potentially...
Hello everyone. Currently diagnosed with Anxeity & BFS, but unfortunately I'm showing more & more signs of ALS, & im terrified of this impending doom...
OK so My name is Shawn I'm a 30 year old male & this story starts just before my 29th birthday. My suffering started about march of 2015. But...
als
ankle
back
bfs
brain
death
diagnosis
early
emg
eyes
mistake
pain
research
ring finger
scared
shoulder
speech
story
support
switch
symptoms
test
thumb
twitch
twitches
twitching
twitching and clumsiness
wanted
weakness
wrist
wrong
Hi,
I just switch unfortunately the forums from DIHALS to thi one:(
Doc`s told me 99 % MND and with hypperfeflexia the chances for something else are pretty slim...
So a question
I have marked atrophy in my both hands and very very heavy in the tongue, also some in shoulder.
What to expect...
So we only have one company in the area that does home health and hospice. Right now I am getting pt twice a week along with an aid that helps Vicky shower and shave me.
Twice now they have had a rep come by and " advise" us. He is really pushing us to switch to hospice and go on medicaid even...
Hi All,
First off I want to send my thoughts and prayers to all of you on this forum that are suffering from ALS and to all of you that are CALS and have lost a loved one!
I was hoping you all could offer some insight and some guidance on what I should do, since you live it on a daily basis...
Hello everyone,
I would like to first thank everyone for posting and offering their opinions/advice in regards to ALS. It takes a lot of courage and strength to discuss such a terrible disease. Also, the fact that a majority of people posting here are currently living with such a terrible and...
advice
als
back
burning
cell
cramping
cramps
emg
family
family history
father
food
friend
insurance
life
life insurance
lift
muscles
neurologist
pain
shortness of breath
switch
symptom
symptoms
twitching
weakness
worried
Hi everyone, I'm new here. It's taken me a while to join as I just haven't been able to face it but some thoughts and opinions would be greatly appreciated
My symptoms are as follows
May 2014- suddenly noticed I couldn't catch my breath, would need to sleep sitting up. Sleeping very disturbed...
anxiety
arm
back
breathing
breathing issues
fatigue
muscle
muscle twitches
new here
night
scared
shoulder
sleep
swallowing
swallowing issues
switch
symptoms
tests
twitches
weight loss