switch

  1. awieleba

    did something that I couldnt before!

    Hey all, For those of you that have followed any of my postings, or ramblings I should say, I wanted to tell you what I did last night. (dont have diagnosed for anyone doesnt know me) It is not a big deal to some but I was able to cook dinner and hold Grace! NOt for long or the whole time...
  2. T

    torn

    my mother has been in the icu for almost two weeks now. it has been hard communicating with her as she had the respirator for the first few days, they tried the bipap a couple of days ago and it was not sufficient. she's now back on the respirator(tube down her throat). she did not want a...
  3. K

    Status: OK

    Just had a 6 month Neuro visit. Speech issues are the most frustrating for me. He and the speech pathologist were very interested in the experimentation I have been doing with nicotine. I will keep you all posted. The speech pathologist was great in explaining why the speech issues so I at...
  4. L

    Help-ALS or not?

    For the last few days I've had this tingling sensation in my arms and hands...as if my shoulders are tired. It's not as if I can't pick anything up or such...but, I definately don't want to hold onto things for too long. For example: The other day I was in the sun watching my sons football...
  5. P

    Dad in denial

    Hello to all of you, I have been reading all your posts for a while now and posted myself about a month ago about my Dad who was developing several MND symptoms. Unfortunately it is looking increasingly like MND - they have eliminated pretty much everything else now through EMGs, blood tests...
  6. BethU

    a little relief + disappointment

    Hi ... this is off-topic, but I've been sharing about my husband's neuro problems, which have been ongoing for many years. We just got back from the pain clinic ... and, thank heavens ... they were wonderful people. First thing they said reading his symptoms and history is "He needs to see a...
  7. D

    need a communication device

    i currently have a switch with my dynawrite but it is so slow and i can't really converse. is there anything out there better. is eye scanning any better.
  8. T

    Scared about ALS. could this be it?

    First thank you for taking the time to read my post and reviewing my symtoms. I have had a rough past month, especially anxiety regarding the way i am feeling. this all started about 2-3 months ago with my right hand becoming painful along the bones/muscles that run up to your fingers. my thumb...
  9. O

    generator

    Hi our hydro was out for 3 hours today, we are always worried about this. A local Lions Club had bought us a gererator and hooked part of our home to be supplied by a switch of a switch. We have 4 battery back-ups but now we do not have to worry so much, as the geneator also keeps our furnace...
  10. O

    need help to find an alarm

    Hi My husband is getting weaker, my question is, does anyone use a device or an alarm for two uses 1) to let you know the hydro has went off so I can get Gary on a battery back up for his bi-pap that he uses 24/7, especially for nighttime if I am really exhausted and I do not wake up right...
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