swelling

  1. W

    Some updates and decisions

    My dad is declining very fast. As new changes happening I would like to ask you for an advice/comments on the following points: Fatigue: My dad is very weak. He almost can't walk or stand up from a chair anymore. Taking him to the Dr or clinic is such a draining task on him. Just getting an...
  2. J

    Advice please....

    Hi – male aged 47, here my history is below, would be very grateful for some input. For just over 2 years (since Sept’15) I’ve had fasciculations – started suddenly in my calves one day. They have been constant there over the 2 years and have spread – I get them on my back and sometimes arms...
  3. S

    Swollen upper lip

    For a few days now, my wife wakes up every morning with a swollen upper lip. She has a trach for more than a year now, so there's nothing touching her lip during the night. I wonder if anyone else has a clue about this, there seem to be no other symptoms (i.e., not swelling in other places, no...
  4. dkcarl62

    Sticky gummy mouth

    Hello all once again, I’m like the college student who never writes unless they need money. Well, I don’t need money, I need help. My ability to eat regular food has declined rapidly. I’m now on strictly pureed foods and smoothies. Water with ThickIt. Everything out of a straw. Pureed...
  5. Duker52

    Swollen Drp Foot

    Do any PALS with a drop foot suffer from swelling of that foot? I no longer walk so it's not from overuse. I also have normal blood pressure, so that's not a contributing factor. I try to always keep it elevated, but that doesn't seem to help. The hospice doctor is scratching her head. It's...
  6. C

    We appear to be nearing the end

    I think we are nearing the end. We have called in hospice and they gave the what they call the standard 'days to weeks'. I guess there's no way of knowing, but the change in the last 24 hours has been dramatic. He has been sleeping most of the time and is difficult to rouse. He's still on...
  7. M

    Scared I Have ALS

    Hello, I tend to worry i have different diseases/sicknesses.. Back in august i was moving apartments and noticed i was felt weak a lot of the day..i wasnt getting much sleep and change normally stresses me out..i had weakness in my arms and legs and felt sluggish..and muscle twitches..short...
  8. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
  9. A

    Over Heating, legs/feet swelling.

    Hi PALS, I'm posting for my Father. He was diagnosed in Nov '15 at the age of 55 and has advanced very rapidly. His mobility is very compromised with little to no control over his left leg and losing motion in his right. He can still walk but it is very painful. To the point: He sits in a...
  10. J

    Feel alone.

    Still waiting on the neurology visit in February. My symptoms are so baffling to my PCP, my right side of my body is mostly affected. Its my hand and foot. They definitely feel weaker than my left. I notice it when trying to hold things. Even something small like my phone. My foot is the...
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