1. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
  2. D

    Weakest Foot Swelling

    My weak left foot continues to swell more and is cooler, actually cold, at times. How high should I try to elevate it? What else might help?
  3. M

    25 years old - BFS has become something more - please help

    Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...
  4. M

    Recently diagnosed

    I am a 61 year old female diagnosed in May 2018. Not a fan. Most of my issues are with my legs at this point and I am hoping to return to work (working from home though). Been to the ALS clinic here in Toronto and they were really supportive and helpful. Doing physio. Getting a foot brace for my...
  5. T

    Sporadic or familial?

    Hello, I have fasciculations, all over the body, for about a year, I became aware when the diagnosis of als of my father took place. No other family members are affected yet. After 6 months of fasciculation I had an emg, result: fasciculations, and units a little wide in the interosseous dorsal...
  6. MJALSWarrior

    Swelling in the mouth

    I have started having periods of swelling of the inside of my mouth causing me to bite my lip and cheek. Anybody got any good remedies to lessen this before I chew my own face off:)
  7. N

    ALS Very Worried

    Hello, I am 23 years old and for the past two months have been experiencing a number of concerning symptoms. The timeline of my symptoms are as follows: Feb - I work out a fair amount and was just getting back into running when I had a patelleformal knee injury to my left which caused pain...
  8. C

    I'm really worried

    Hi, i'm male 22yr old, from Brazil, so first of all sorry for my bad english. About a two months ago, i started to feel tingles in left side of my face, in my right leg and palm and pinky and ring fingers of my right hand. The feel in the hand and the leg it was not exactly tingles, is like...
  9. E

    Looking for input- is this ALS?

    Hi, Firstly my heart goes out to all those of you with ALS and your families. I have deep gratitude for the participants of this forum. This is the first time I’ve posted in a forum ever, but I am concerned and am looking for advice as to what is happening to me. First some background, I’m...
  10. S

    parent with bvFTD now falling

    Hi Everyone-- Hopefully I'm posting this in the right place. About 6 years ago my father-- longtime academic, loving husband, stay-at-home dad, and just all-around exceptional human being-- started acting...weird... at times. "Insidious" is probably the best word to describe the onset. It...