swallowing

  1. L

    Bulbar ALS?

    Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing...
  2. Q

    Swallowing Issues (ALS Related?) Please Help.

    Hi, I want to start by saying I am aware that this is a very serious illness and am in no way trying to make a mockery out of it, however, I'm here because I'm trying to educate myself on the disease to better assess whether I have it, what my risks are etc. The last couple of months I've...
  3. J

    Realy scared....is this ALS???

    First of all, thank you for allowing me to tell you my story .... sorry for my bad writing English. i am very scared, I think I have many symptoms of ALS, like your opinion. Since 1,5 year I have very slow loss of strength, especially in the legs but recently also in my arms. If I lift...
  4. H

    Seeking Guidance (Again)

    I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
  5. Buckhorn

    PEG placement with FVC of 31?

    So, my husband has just recently agreed to a PEG placement, and we are actually scheduled for it 12/5th. He has no problems chewing, swallowing or talking at the present time. However, his respiratory state has continued with a predictable decline. I have read here on the forum that PEG...
  6. J

    Advice please....

    Hi – male aged 47, here my history is below, would be very grateful for some input. For just over 2 years (since Sept’15) I’ve had fasciculations – started suddenly in my calves one day. They have been constant there over the 2 years and have spread – I get them on my back and sometimes arms...
  7. K

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input I have done the math, and I'm a statistician - getting diagnosed with ALS is extremely rare. For someone like me, younger than 30 (I am 29), it's even more rare. On top of that, "bulbar onset ALS" is an additional...
  8. A

    Concerned

    Hi everyone, firstly to describe when this all started I took an antibiotic called ciproflaxin for a persistent headache that my doc believed was sinisitis. Since then I found out this was a bad decision as I had no tests to confirm it and this drug is only used in life or death circumstances...
  9. F

    Dysphagia for a month and a half

    Hi all, I want to thank anyone in advance who can shed some light on my situation. I’m a 25 year old male with no existing health conditions. Starting about 6 months ago, I’d occassionally have a period of 5-10 minutes where I’d feel like I was unable to breathe well. This would happen...
  10. L

    Possible ALS "symptoms make a good case for it"

    Hi, I've had lots of neuro symptoms for years now, but the past year have been the first time I've actually had a neurologist that has seen some UMN and LMN signs. I've had fasiculations in my lower legs, I get parasthesias, I've had some trippings at times, I get tiredness in my legs at...
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