Well the holiday is here and I wish you all a very good one. For anyone who has read my posts I continue to be a basket case. Just found out that the emg that was done was only on my right extremities. At the time I was medicated with the cranial headache so don't recall the order. Well if...
Hi all,
I finally got to the ALS clinic and they think I may have MG. It is as rare as ALS, but symptoms are supposed to be treatable and life expectency is supposed to be close to normal. It is more than I could have wished for. They are sending me to UCLA to attempt to confirm because my...
FOR ANYONE THAT HASNT TRIED IT ,ITS WORTH A TRY . i HEARD OF VITAL STIMULATION THERAPY VITALSTIM.COM 14 TREATMENTS IT HELPED ME BUT THEY WILL ONLY DO 14 TREATMENTS . I DO MINE WHEN EVER I FEEL IM IN DANGER OF CHOKING ,SWALLOWING ISSUES . ONCE YOU DO THE TREATMENTS YOU'LL SEE WHERE THEY PUT THE...
First, let me thank those who have been kind enough to send me emails and the others who have responded to my queries. I don't feel alone.
I tought I would update you on my situation and ask for suggestions as to who to talk to first. Besides the symptoms, which I have described before...
Hello Everyone - I am new to this site and need some advise from anyone who is willing to help. Let me give you a little background of my initial sypmtoms and where I'm at today. It all started back on July 24, 2004 I go real sick with a upper respiratory infection. A few days into it I...
about swallowing
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HI all,
I'm a newbie and not diagnosed, but do work with neurological disorders and swallowing. In answer to you question Liz about swallowing:
Depending on what muscles are being affected will...
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eating
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wrong
Hi all Im 39 years young and have just been told that I have ALS. After the feelings of devistation wore off Ive decided to make the best out of the worst situation I have ever faced. I thought it would do me good to read all I could about this disease and ask a lot of questions. Im interested...
Dad is becoming increasingly weak every day. He is barely able to walk now and his back and leg muscle feel "tight". Is there any way to get relief ?
One guess of mine is he is eating less due to swallowing issues and because he can't taste food well nor does he feel hungry. May be his body is...
Hi there:
A very close family member has recently been diagnosed with Bulbar ALS. Very classic symptoms (swallowing issues, inability to understand her talk, coughing - minor; but thru meals, and incontrollable emotions ...laughing and crying, twitching of nerves in arms). Only 1 diagnosis has...
ability
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