swallow

  1. P

    Mucus Help- Bulbar ALS

    Dear all, My mom has been having a very difficult time with mucus accumulating at the back of her throat and not being able to swallow or get it out. She uses a cough assist once a day which she hates. A suction machine helps a little but not as much as we hoped to. For medication, she takes...
  2. N

    what to do when...

    My PALS can't sip liquids or eat applesauce to get his pills down? I see him struggle now to suck the fluid through the straw and have asked the palliative nurse how he can take his meds if he can't swallow them this way and she said we just don't give them to him if they don't come in a...
  3. R

    Is this depression or something else

    My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family...
  4. W

    Is it ALS?

    I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing. For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
  5. N

    Progressive symptoms, very worried about ALS

    I have been having unusual symptoms since a couple of weeks after the birth of my third child in April although things seem to have really progressed since late July. ALS only really appeared on my radar about 3 weeks ago when I felt my speech was changing. I have copied my main concerns below...
  6. D

    Is this ALS?

    I am a 42 year old woman. I have been having muscle twitches all over my body for 3 months now, I have been to the dr multiple times. My blood work is perfect, they have checked my potassium, calcium, phosphorus, magnesium etc, also checked my thyroid and para thyroid, my CPK is normal, no...
  7. J

    Worried about a couple symptoms

    For the past 2-3 years I have noticed my hands shake, to the point where it's difficult for me to, say, take a focused photo. About 2 months ago, a friend of mine noticed that the "shake" carried on up through my arm, like some kind of muscle spasm. Over the past couple of days, I've...
  8. J

    Denver, CO improves ALS symptoms?

    Hi, I recently came back to NJ from a four-day trip to Denver, CO. While I was there, several of my symptoms had improved noticeably. My ability to swallow water had improved back to the pre ALS levels; the back of my knees which are usually the stiffest part, softened up and made my walking...
  9. M

    Question about NIPPV machine

    My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...
  10. M

    lost and need advice / opinion

    Hi everyone, I’m Maxime from France and I’m 39, have a past of intensive sports practice (but I smoke), tall and apparently strong – 1,93m, 110kg. First, I wanted to congratulate you for your wonderful empathy and the time you take to support those who desperately need it. It's pleasant to see...
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