survey

  1. R

    Hoosier PALS, CALS, etc - Last call for advocacy feedback for ALSA 2008 issues!

    If you live in Indiana, please take a moment and fill in the ALSA Advocacy Listening Survey at www.alsaindiana.org The deadline has been extended but today (Thursday, Dec. 20) is the last day to submit your thoughts. Thanks for taking a moment and telling ALSA what is important to you for the...
  2. C

    CALS -Busy Bees

    Just a bit of information that I found interesting.... On average 9 1/2 hours? I never had the time to even break it down or calculate it, now I know why! A Cross-Sectional Study of Caregiver Time Use in Amyotrophic Lateral Sclerosis Adriano Chio, TorinoPiemonte, Italy, Augusto...
    • Clbrink
    • Thread
    • als cals caregiver caregivers caregiving caretakers disability feeding hours information survey toileting
    • Replies: 1
    • Forum: Current caregivers
  3. David

    Please help by answering this survey

    The upgrade for the site is complete and everything went very smooth (for the most part). I wanted to send a big thanks to Al and Cindy for all their help. An extra big thanks to Al for his gentle and kind kick in my pants to actually get the ball rolling :) I'd also like to thank all of...
    • David
    • Thread
    • accessibility age ball fear frustrated increase information please help please help me survey wanted website
    • Replies: 8
    • Forum: General discussion about ALS/MND
  4. W

    Need your vote for ALS project in AMEX funding competition

    American Express is hosting a member survey that will select a worthy project to fund. An ALS project was selected in the top 50. If you are an American Express cardholder, you can vote on the project to fund. See the details here: https://www.membersproject.com/home.action The project to...
  5. Jamiet

    ALS Survey - ALS Type and Sympt. - ALS diagnosis - Progression

    Hello all, I thought it would be interesting to know each of your stories (again) on some, but this time in context from start to present, possibly timeline, highlighting important times, such as symptom to diagnosed (or un-diagnosed) to current. I'm particulary interested in: 1) Symptomps...
    • Jamiet
    • Thread
    • als bulbar clinic confusing family free info information life pain possible a problems progression questions students survey symptom symptomps symptoms symtopms timeline tongue treatments
    • Replies: 37
    • Forum: General discussion about ALS/MND
  6. W

    ALS Survey?

    To All: I was in a local ALS support group meeting and we were brainstorming things to do to cure ALS. This was a offshoot of a discussion we had on the MDA Gift of Time event held here in Denver. Which BTW, was a quite a success. 650 people attending the fundraiser for Augie's quest. But I...
  7. Countrycouple

    Might be in the wrong Area...

    Hey Everyone.. I might be posting this in the wrong area.. But when I had Mom at the rehab at the hospital for her 3 month visit.. Mom brought up some great idea's.. Mom when she was dianosed with this disease.. she instantly thought it would be grat if we had a spokesperson for it here in...
  8. David

    Survey of People Living With ALS (Ontario/Canada)

    If you have 5 minutes please take the time to complete th survey here: http://www.keysurvey.com/survey/113965/12f6/ This is a joint request from the ALS Society of Ontario and the ALS Society of Canada. Here are the survey details: "Alec Muir, whose mother has ALS, is studying at Sheridan...
  9. I

    Help with survey

    I am conducting a survey into possible factors that correlate with ALS. This is not for profit, I am not associated with any other company, and there is no advertising whatever. If you have ALS, or can answer on behalf of someone with ALS, I would greatly appreciate if you would fill out the...
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