survey

  1. chally

    Survey report

    A government survey reports that 91 % of illegal immigrants come into this country To see their own doctor.
  2. P

    Research to Aid the ALS Community -- Please help!

    Hi all, We're a team of students at Penn State University in State College, PA. For our senior design project, we're trying to prototype new software/hardware to give emotions to the artificial voice assigned to ALS patients when they can no longer speak. To design something that aids all of...
  3. gooseberry

    relaxation??? hell no!!!

    So today was supposed a nonstressful relaxing day. After groceries and laundry, my favorite guy starts with...can you get me drink, I am hungry can you make me something, and wait for it...wait for it ...the most evil thing known to mankind....can you call verizon because the box isnt...
  4. C

    Invitation to Participate in an ALS Caregiver Survey

    Dear fellow caregivers, this is an invitation for adult caregivers (18 years and older) who currently provide care to their loved one with ALS to participate in this important survey research! Please click on the link below to the survey, which will take about 20-30 minutes to complete. Thank...
  5. ShiftKicker

    Prescription suggestions for fatigue?

    Aside from my spasticity, my absolute main issue is soul destroying fatigue. Actually, I am at the stage where I could even handle increased spasticity if I had any sort of energy. I have tried increasing sleep, various dietary supplements, massive amounts of iv VitB, changing my diet, increased...
  6. I

    ALS Survey

    Hello Everyone. We are MBA students and are currently doing a design thinking project to understand why Rare diseases do not have medicines. We are focusing on ALS, and have been interviewing Drug companies, Medical Doctors, Scientists, and Government healthcare professionals. eE have designed...
  7. K

    Short PALS Survey (5-8 minutes) looking for respondents

    I am a member of a team of researchers from the University of Rochester and the University of Michigan who are currently running a brief web survey (5-8 minutes). We are very interested in ALS patients’ opinions and perceptions regarding clinical research. Our goal is to improve the way...
  8. Atsugi

    COST OF C9orf72 TEST

    According to the rate schedules I've seen online, a blood test to survey for the C9orf72 repeat mutation costs about $260. I'd like to keep the test out of insurance records, so I'll be paying cash. Does anyone have any experience paying for the C9 test?
  9. G

    Do I have ALS, please help.

    HI everyone. I want to share something with you. I have a big concern that I want to share with You! About 6 months my fascicularia feet. At first it was on the right calf, then shifted to the left, and today appeared right reed. Of the things I found on the Internet right I was scared and it...
  10. Nuts

    CALS sleep (stop laughing!)

    It is wwwaaaayyyy too early for me to be sleep deprived! I wake at least three times a night, which is very hard on me. I've always been an 8 hour a night sleeper. Oh boy am I in trouble! I wake when he has trouble turning over. He can do it, but it's difficult and he gets tangled, so I...
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