survey

I got an Email request from the ALSForum to participate in an ALS Survey on 7/18/17. So, I clicked on the survey form but it says, "The survey will be conducted on the second week of July 2017. Hmmm... the 18th of July is about in the middle of the third week of July. I'm sure the survey is...

** update: registration now closed ** This is a bit late in posting so please sign up as soon as possible. The objective of the research is to get PALS’ thoughts on ALS. The interview will take about 45 minutes and will also involve being on a computer. $100 USD will be provided to each...

Researchers from the School of Behavioural, Cognitive and Social Sciences at the University of New England are investigating the role of psychological flexibility on understanding and acceptance of PEG tubes and non-invasive ventilation (using a BiPAP machine) in people with Motor Neurone...

Hey guys! I'm doing my senior thesis on re-designing adaptive clothing/update it to fit in with current trends for wheelchair users and just wanted some feedback from a few people and I figured this forum would be the best place to ask! Let me know what are the most annoying things about...

Hello Everyone, I'm new to this forum and I have a very strange question for patients with ALS. Thinking back to before your diagnosis, did you have any type of survey or medical procedure that required any type of anesthesia? If so, approximately how long before your ALS diagnosis did your...

If you are diagnosed with ALS and would like to participate in a 45-minute phone survey to help with a new ALS treatment and earn $100 doing so please submit the following quick survey: https://www.surveymonkey.com/r/DKWNFBV (3 questions) Requirements: You have been diagnosed with ALS You...

For those of you who have been diagnosed at least 1 year, how often do you go to clinic AND how often does your neurologist ask you to come to clinic? Since diagnosed, Bedlack wanted me to come every two months. I said no and came every 3 months, 3 times. The last clinc was 4 months ago. I...

Microsoft Research is working on developing communications technologies to improve quality of life for people with ALS and their families. We have a short (5 - 10 minute) online survey that caretakers of people with ALS can take that will help inform some of these technologies. You can take the...

We've had folks mention their desire to see the ALSA focus on different areas of support. Please consider taking this sort survey that asks what we think their priorities should be for increased funding and support. Email - ALS Association Care Services Survey - The ALS Association

Good morning everyone :) I did a 45 minute phone interview this last Wednesday on ALS. I will be getting paid a $100 for it, but would have done it for nothing. The young man that interviewed me was very professional but yet compassionate. All I had to do was tell my story about how ALS has...