survey

Everything about this European implementation of a previous ALSA-funded US survey is bogus. Being published in a clinical journal and headlined in Mobility Management as "People with ALS Report 'Acceptable' Quality of Life" is just icing on the cake. To read this abstract is to appreciate how...

https://wustl.az1.qualtrics.com/jfe/form/SV_a9wIWEPPwuzT9Qi

The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...

This is a survey on computer use (PC, laptop or tablet) by pALS or their full-time caregivers. It’s focus is Microsoft Windows but I need a complete picture, so if you use a different OS, such as iOS or Linux, please select the ‘Other’ Option: Other – No Windows here! The rest of the poll...

I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website...

At daybreak every morning aboard his ship, the old admiral would slowly but mightily struggle against the wind to walk out to the ship’s bow and survey the sunrise. He would take off his hat, hold it in front of him, and mumble a few words. Suddenly, the admiral found a skip in his step, and...

Hello, we are looking for help with a short survey we are creating. This is a university project to help caregivers. It asks about making health care decisions for other people who cannot make their own decisions. Please take a moment to complete the survey. Please have in mind a specific...

Hello! My name is Emma Courtney and I am a Junior at Walnut Hills High School in Cincinnati, Ohio. This year, I am enrolled in AP Research, a year-long course that concludes in a final research paper, comprising of both research and our own investigation into a topic, that is used as the exam...

I'm no longer eligible, so don't know how good a study it is, but in case you're not on the mailing list: This initiative, titled IMPACT-ALS (Investigating and Measuring Patient And Caregiver Trends about ALS), is a collaboration with three industry partners (Biogen, Ionis, and Cytokinetics)...

Greetings All, I am conducting research into Psychological Flexibility in people with ALS and if it is associated with attitudes towards PEGs and Non-Invasive Ventilation. Participation involves doing an online survey that takes around 15 minutes. This will be your last chance to participate as...