surgery

  1. M

    Husband is at a low risk for ALS

    My husband started out with a weird sensation in the middle of his back with mild pain starting around August. He also started to get numbness and tingling all down the left side of his body. He had 3 MRI’s done and there weren’t any lesions (he was being tested for MS) but did show a very small...
  2. H

    Noticable atrophy and weakness

    First off, let me say I have reservations about even posting this because half of me feels silly, but I can't get the concern out of my head. I'm a w/f 41. Back in March of this year I had some severe neck pain, went to the dr, got steroid shots and was on my way. May 1st, I wrecked my...
  3. H

    after trach surgery...

    my mom did the trach on last Friday. she was in ICU for 1.5days and transferred to PCU(progressive care unit). after few hours of her surgery, she started to bleed a lot so had to go back to surgery room to control the bleeding and to chech if everything is okay. next day of surgery, she was...
  4. B

    Sorry to bother

    Hello First I want to say I am so sorry for the affects this disease has caused on peoples lives. I have neurologist appointment but I am about a month and half away from it. I have some symptoms that I would like to run by to see if I can rule out ALS So I didn't really notice anything...
  5. H

    Help on Trach

    Hi , my name is Jennifer and my mom is diagnosed as ALS last year(8/2017). Recently, her pulmonary doctor recommended my mom for the trach due to using 24 hours of trilogy. i am also researching about it but couldnt find the answer or opinion that that my mom has after she gets trach (Note: She...
  6. Kristina1

    frightened by another post

    The post in general forum about eye lid surgery frightened me. I was under the impression that all or vast majority of pals can use eye gaze communication indefinitely despite body becoming fully paralyzed. At this stage in my disease my feelings are that I want to continue to live for as long...
  7. L

    Foot drop

    Hello all you beautiful strong warriors. I had a second nerve conduction emg today after having a surgery to decompress my peroneal nerve. For months i harrassed you guys with my crazy health anxiety questions thinking my drs were wrong there has to be more than just nerve damage I pleaded to be...
  8. T

    Just diagnosed but rather advanced

    My PALS has just been diagnosed and not had their first visit at the ALS clinic where they will meet with all of the specialists, occupational therapists etc. she had neck surgery 9 months ago and symptoms increased after that, she was diagnosed with locked shoulder and treated for that for well...
  9. J

    Pretty scared. Another EMG upcoming

    Hello, My story begins in January or February of this year. My left foot would fall asleep very quickly and that leg was numb. I'd had a previous dvt and high d-dimer, but no clot was found in that leg on Feb 1. I began to have long periods where my heart would race and pound hard for no...
  10. M

    Questioning Symptoms

    Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...
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