support

Hi there Great respect to your forum and the great people that are fighting the disease, friends and care givers! ALS is a shocking tragedy for humanity in 2019, 150 years after its discovery still no cure. About myself I'm Asian, live in Calgary, Canada. I'm 33, a father of 2 lovely kids at...

Hello everyone. First off, I would like to say thank you so much for the continued support you provide to people who are scared about symptoms or newly diagnosed with ALS. A bit of background information about myself: 27 y/o caucasian female who is in the midst of evaluation by a...

Hello- I am a 29 year old male. for the last 5 years I have been experiencing twitching all over my body. Pretty much anywhere you can think of, including my tounge, has experienced twitching. Starting about a year ago I noticed I was having seriously over emotional reactions to things. For...

Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...

Even though I can still walk, I can't walk far. I went to a medical supply store to find a rollator. We now only have one store in town and they have quite a markup plus very limited choices. I'm looking for: 1. Extremely light weight and easy to fold 2. back support and seat 3. place to...

My love is gone. I feel numb and lost even though I thought I was prepared for this. He hung on so so long, I don’t know how, but he did. This journey has forever changed me and my family. The little ones seem to be coping okay so far (way more clingy though), and I am trying to find a new...

Mori Farrell, a friend from my local support group, gained her wings yesterday afternoon. She was my first PALS friend after my diagnosis. She lived on the beach in Flagler. We had lunches together, visited each other, and kept in touch by e-mail. She was a lawyer and so brave. Her battle...

I know tons of people post on here scared to death, and the people who read this are probably thinking "Ugh, here's another one" but I'm truly very scared and don't know what to do. Here's my situation: 30 year old female About 5 months ago I noticed a slight indentation on my right forarm, I...

Bob Stansbury, also known as WheresWaldo, passed on July 22, 2018. He and his wife, Therese, were members of the ALS Support Group in Chico. I met Bob through this forum and we realized the connection during a Support Group meeting. He was diagnosed years ago but remained upbeat and very...

At approx 1:07 this morning Brian went home to be with the Lord. DD and I were at his bedside. He went very peacefully. DS has just left not long before and came back with our call. This coming Jan 17 would have marked 39 years together. Feb 16 would have been 34 years of marriage. We...