support

  1. A

    Trying to grieve

    One month and one day! I'm checking in to say hello and to let you know that this forum is still so very helpful. Since Jim's death I have been surrounded by family and our three sons. I've had wonderful support from so many. But still I cannot leave this journey behind. Jim's funeral was held...
    • Aussiemndcarer
    • Thread
    • als back cals death family food free goodbye helpful life shower support symptoms wanted worried
    • Replies: 9
    • Forum: Past caregivers
  2. skipper66

    Just saying Hello

    Hi Everyone, Thought I'd stop in to say Hello. For new members I'm Kim (Skipper). I lost my dad November 21, 2015 to limb onset ALS. He lived with it for 3 1/2 years since his diagnosis. Looking back we think he had some symptoms for at least a year before his diagnosis...
    • skipper66
    • Thread
    • age als back brother call for help chair clinic dad diagnosis eye fell grief hours life onset pwc support symptoms veteran voice wanted
    • Replies: 2
    • Forum: Past caregivers
  3. Lkaibel

    A Kind but Difficult Question

    We have kind friends and I have co-workers who ask how Brian is doing. I give my perky answer. "Great for being almost 9 months out from diagnosis. He uses leg braces and a cane and has some weakness in his hands but he is still walking and doing things". It is TRUE, my perky answer. I really...
  4. P

    A new poem.

    Help, I need to go to the bathroom Words I thought I would never say. But reality finds its way into your life. Giving you challenges that must be faced everyday. Bringing forth new beginnings. Machines to keep you alive. Some will say that's life support. I just call it life. But that alone is...
  5. pdcraig

    I didn't know what I didn't know

    I've been catching up today and in the roll call was introduced to Slippery Sally All I can say is "God d****t". How is it I have never heard of this? Thank you Tillie BTW. Even 4 1/2 years into this, there is still the seemingly never ending, "I didn't know that." It got me thinking of all...
    • pdcraig
    • Thread
    • bipap clinic contracture cost disability finger health hospice ice information insurance life mobility palliative care respite support symptom volunteers
    • Replies: 19
    • Forum: Current caregivers
  6. H

    Concerns about ALS

    Hi guys! Long time lurker here! I am having some real concerns with my health, and was hoping you could share your opinions on my symptoms. I have read the sticky, and greatly appreciate you taking time to look over this. I have listed all symptoms I have been having, and am scheduled to see a...
    • Havalyn
    • Thread
    • ability age als ankle arm choking cramping early eyes family history fatigue headache muscle muscle twitching muscles neurologist neurology pain problem sleep support swallowing symptoms test twitches twitching unsure urgent vision wanted
    • Replies: 7
    • Forum: Could this be ALS?
  7. A

    Hey to everyone (that means hello in the south) Newbee

    First I am totally amazed by everything in the forum. In the past hour or so I have cried and laughed and realized we all have a lot in common. Not just ALS, but emotions and stories, support and heartache and more. I was diagnosed in November of 2016. Originally the thoughts being passed...
    • Arlee
    • Thread
    • ache als arm back book brain chair diagnosed diagnosis eye friend hope ideas mri muscles neurology problem problems story stroke support surgery tests thumb walker wanted work young
    • Replies: 28
    • Forum: Newly diagnosed
  8. J

    Newly Diagnosed Mom

    Hi Everyone, As much as I'd rather not be here, I am. My mom was just diagnosed this week with limb onset ALS. We previously suspected it in December, so I created my profile back then and have been reading as much info as possible on here. Now it's unfortunately confirmed. I look forward to...
    • jennska
    • Thread
    • als back diagnosed info newly diagnosed onset reading support
    • Replies: 5
    • Forum: Newly diagnosed
  9. E

    Hello from Edmonton

    Good day everyone, I have joined the ALS society because well it is a cause that is near and dear to my heart. In grade 8 I wrote a paper on woman who asked for the right to die with dignity as this extremely painful degenerative disease took her life. Her story impacted me on so many levels...
    • Enrys
    • Thread
    • als anger canada chair cure design disability family family member hearing heart hope life love medical money power research residence right to die sad story support work
    • Replies: 1
    • Forum: New members
  10. C

    Time to say goodbye

    Hi! Some update. Last update 😊 After 5 days in Istanbul hospital under survalience of member of Turkye MND-ALS doctor group( he was 65 years old proffesor who had a lot of Als patients) numerous tests 17 vials of blood, emg done by their best emg specialist, they found .... nothing ABSOLUTELLY...
    • corwin
    • Thread
    • age als atrophy back clean emg emg goodbye health hope mental health mnd muscle muscles shaking support tests tongue update wrong
    • Replies: 1
    • Forum: Could this be ALS?
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