support

  1. B

    The Thrill is Gone

    Well my dear friends, my "heaven sent" physical contact with my wife is gone. I have gone down hill in the last month; wearing trilogy more and body losing muscle mass fast. My wife says she just can't do it anymore, which broke my heart because that told me she was only doing it for me and was...
  2. J

    Caregiver to my dad Gary for 5 years

    Hello My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
    • Jasbagley
    • Thread
    • age als bed caregiver dad diagnosed dynavox eye free hoyer hoyer lift lift manual medical power power wheelchairs questions ramp respiratory support tobii tobii dynavox trach wanted wheelchairs work
    • Replies: 2
    • Forum: In memory of
  3. J

    Caregiver to my dad Gary for 5 years

    Hello My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
    • Jasbagley
    • Thread
    • age als bed caregiver dad diagnosed dynavox eye free hoyer hoyer lift lift manual medical power power wheelchairs questions ramp respiratory support tobii tobii dynavox trach wanted wheelchairs work
    • Replies: 2
    • Forum: Past caregivers
  4. Lkaibel

    It's The Small Things...

    I did some small things today that made me feel better. I moved the weights and bench from the middle of the basement that I had to look at every time I fed the cats (he does not do that anymore). He had not used them since November and today I realized it was paining me to see those All The...
    • Lkaibel
    • Thread
    • brain cats conversation denial hours meals progression running slow progression support work
    • Replies: 19
    • Forum: Current caregivers
  5. chally

    Down a notch

    Well I am glad to say my feed tube surgery went well and I am recovering good these last six days. I guess what I like to pass on from the experience is what I had heard from the folks that had it done before me. Even though this can be a simple procedure it still takes it's toll on our...
  6. S

    ALS Forums

    I have to say for such a large ALS support forum.... where are the topics of hope, the success stories, the mentions of what works and what doesn't. This is part of the problem, no centralized location for people to share this data.
  7. S

    Limbo Land - where do you turn?

    Hi again, I posted a month or so ago and have been waiting for further tests and trying to just get on with things in the meantime. This is really a question for anyone who understands the UK's NHS system, I was in a UK group but seems I've lost the access to post. I have neurological signs...
    • Sammbie
    • Thread
    • advice atrophy back children clinical clonus diagnosis emg life mnd muscle muscle twitches neurology scared support tests twitches weakness work
    • Replies: 2
    • Forum: Could this be ALS?
  8. T

    Afraid of ALS

    Hello, I am very worried because I have symptoms that can be caused by ALS. It all began 3 month ago with sensory disturbances caused by entrapment of the ulnar nerve. I had sensory problems (elbow pain, numb fingers at night etc) and I felt an awkwardness in my right hand. On that occasion, I...
    • T4xx
    • Thread
    • als canada emg fasciculations fingers muscle muscle wasting neurologist night pain problems reading scared stress support symptoms symptoms of als thumb wanted worried worry wrist
    • Replies: 9
    • Forum: Could this be ALS?
  9. B

    Some kind of Motor issue going on here....

    Hi all, I think like most ppl who have ended up here, I'm thinking that there is a slight possibility I might have ALS. That sounds crazy just saying it.....I'm hoping for a listening ear and maybe a few suggestions or stories etc.....basically support. Thanks in advance. So here's my story...
    • Babycakes
    • Thread
    • als atrophy emg finger immune mri muscles neurologist night pain story support thumb weakness
    • Replies: 25
    • Forum: Could this be ALS?
  10. P

    Very worried and scared with ALS symptoms

    Hello all-- First and foremost I would like to commend everyone who has contributed to this site. I have been reading since the new year but haven't had the courage to create an account until now. I am very impressed at the outpouring of support and love that I've read in many threads. I...
    • profeJ
    • Thread
    • als angry ankle atrophy cramps diagnosis emg falling fasciculation fatigue mistake muscle neurologist neurology pain ring finger sad sleep stiffness support symptom symptoms test tests thumb twitching vitamins weakness wrist
    • Replies: 14
    • Forum: Could this be ALS?
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