support

  1. J

    In need of suggestions

    Hello everyone, My wife and I have used this forum as a place to gather information and try to prepare as best we could to help my wife's mother. Roughly a year ago she was diagnosed with ALS and it has been quite aggressive over the last 6 months. At the start, we had done everything we could...
    • JLM1911
    • Thread
    • ability age als balance caregivers depression diagnosed early feeding feeding tube health hope life mental health mobility night power progression speech speech device support timeline wanted wheelchair work
    • Replies: 10
    • Forum: General discussion about ALS/MND
  2. S

    Still here, waiting in limbo land..

    Hi everyone, I posted a little while ago (March, I think). I was waiting for my EMG, which I had on the 1st April. Since my last appointment with my neurologist my symptoms progressed some more, more weakness and atrophy in left foot and hand and a cluster of pyramidal signs. Due to the...
    • Sammbie
    • Thread
    • ability atrophy back brain early emg fingers foot hours ignore kids mri neurologist progression support symptoms wanted weakness
    • Replies: 3
    • Forum: Could this be ALS?
  3. bkite

    Tomato Juice for Saliva Control

    Has anyone had benefit, in saliva reduction, by taking tomato juice? I just came across this article: "For the management of excess saliva, we suggest drinking two glasses of tomato juice daily, if possible. Tomatoes contain high concentrations of lycopene, which is a natural reducer of...
  4. S

    What do we do now?

    My husband was diagnosed on February 13, 2017. We will have our second clinic visit with the team on May 10. My husband has been using a walker since mid-March. Even with the walker, he struggles. His legs will wiggle and wobble, but not move. I am looking for advice. Who will suggest what we...
  5. Jhettinger

    VA What should I expect to receive from VA

    After reading all the post regarding VA Medical Support I have some questions for the audience. Atsugi thanks for your guide. I read that an ALS team would be appointed to my case. My VA PC Dr said she is that team leader. I am confused, she knows nothing about ALS. First visit she told me...
  6. chally

    Vet support group

    Today my cal and I went to a vet support group. This is the fourth time. Each time we lose someone or two and get new vets coming in. It's very interesting! Lots of sharing ideas of what works and calming the new folks who are scared $ hit less and for good reason. We each have a disease but...
  7. L

    New to this forum

    Hello my name is Luis, just starting in this forum because I am fighting this terrible disease. Diagnosed September 2016. It took almost 1 year just to find out about this. Doctor told me I have 3 years But I live one day a at time, tomorrow is not guarantee. Enjoy each day while I can. I like...
  8. S

    Had to change the locks to keep the In-laws out.

    Sadly the time had come I needed to change the locks and access codes to the house. My In-Laws feel it's ok to come and go as they please..My Mother in law sits and goes on and on about the loss of her daughter to my 17 year old little girl.. it's very upsetting for all of us but I can't have...
  9. R

    Tobii Dynavox I-15+, Eye Gazer / Computer With Stand and Case for sale

    I am selling computer used by my father. Mint condition, very practical stand and wireless keyboard included. Price negotiable, worldwide shipping. You can send me an email: [email protected] PRODUCT PAGE https://www.tobiidynavox.com/devices/eye-gaze-devices/i-15-with-communicator/...
    • razgorsek
    • Thread
    • aac communication computer access design dynavox eye father for sale keyboard power sale support tobii tobii dynavox tobii dynavox i-15 tobii dynavox i-15+ voice worldwide
    • Replies: 3
    • Forum: Used ALS equipment for sale
  10. T

    Seeking Point of Clarification

    Hi and new to the forum. I really appreciate what this forum does both for actual patients and those of us who suffer from various symptoms and have anxiety/fears over ALS. Thanks in advance! Suffice to say I have had some symptoms such as twitching / muscle cramps / weakness that have worried...
    • that1guy
    • Thread
    • ability als anxiety cramping cramps finger muscle pain problems support symptoms thumb twitching weakness worried wrist
    • Replies: 1
    • Forum: Could this be ALS?
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