support

When a PALS needs extra neck support what is available beyond an attachment on the PWC? I mean when they are not in the PWC, like when taking a shower in a shower chair or during transfers with a lift.

Hi all, I'm a 23 year old male and I started experiencing symptoms about a month ago. It started with abdominal pain which I was then sent for an endoscopy and colonoscopy. During the prep for the colonoscopy I started noticing back pain and other body pain but was told this was normal. After...

I am a new member to this forum. I was diagnosed with a motor Neurone disease in July 2016 after complaining of weakness in my legs and arms that commenced in 2012. On top of that, I was stricken with Guillain-Barré syndrome in September 2016. After 9 months of hospitals, rehab facilities and...

Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...

Hello, I have been searching around on this site for about a year now, but more often the past few months. I have been very hesitant on whether or not i should post as i do not want to waste your time, but I am to the point where i feel as though I have nowhere else to turn. I know you are not...

Tobii Dynavox I-15+ is large screen, eye controlled speech generating device. It’s rugged design, unparalleled power management, support for touch and gaze input are just a few of the things that make the I-15+ ideal for those who rely on augmentative and alternative communication (AAC) for...

Took a journey into the Cranberry wilderness area here in WV with two good friends. This place is one of the largest and most remote places on the east of Mississippi River. We went in 7 mi on a gravel road and never saw another person all day. We all said we should have brought all our camping...

Hi all, Thank you for taking the time to read this. I will be as clear as can be: I am 23 years old. In late May, I noticed a reduction on the size of my right arm. In the gym this was accompanied by a reduction in strength. Motions such as curling and pulling felt as though certain muscles...

I am writing this from our trailer at Madison Campground in Yellowstone National Park. I will post this message to a new thread when we get to cell phone coverage so you can share some of the adventures we are having. This has been an interesting trip. I debated long and hard about cancelling...

Yesterday I had my first fall as a fairly new PALS. Here's a bit of background and the story. My passion is playing the bassoon with a very good orchestra. I know my bassoon days are numbered, thanks to ALS, and I've arranged to have a backup player assist me with some of the pieces to help...