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My husband Jim started losing his voice over 2 years ago.We have seen numerous doctors. Next he started having swallowing issue's We saw 4 neurologists and had many test.The last doctor ask about military service.He was in the Air Force.We have been lucky to get so much support so fast.The...

So, it has been 4 days since my dad passed. The pain comes in waves. I know that he is finally healed, but I miss him terribly. Please don't get me wrong, I don't miss the shell he was left with.... I miss my best friend. His death was horrible. I would like to say it was peaceful, however...

Hi all, I'm Tiina. I was diagnosed on 9/28/2017, UMND ALS, after 3+years and 4 neurologists... My onset was probably more than 4 years ago. So I'm a slow progressor, still trying to wrap my head around this. I'm still working full time (slacking a bit), and have good support from my mgmt at...

Will insurance cover a lift chair or is it usually out of pocket expense? How comfortable are they really-- for example, comparing to a la-z-boy type commercial recliner? I dont get enough support on our sofa, I am always tensing my body to keep from sliding into an uncomfortable human...

Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...

Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...

Hello, This is my first posting concerning the possibility I may have ALS. I'm 44 years old and until recently I have been relatively healthy. I work from home and my occupation requires me at a computer for long periods of time and my lifestyle has become more sedentary the past couple of...

Hi folks! I have a good feeling about finding this forum! I already found a LOT of helpful information in the german ALS forum, but there's not a lot of people around "living" in the forum, spending time with each other. And that's what I could use, a community where everybody know's what a bad...

RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...

In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...