stupid

  1. D

    My symptoms and a small word to all people suffering from this disease

    Hello there, I first want to tell you that I feel highly sorry for all of you who have been diagnostised with this terrible desease. Especially for the people like me, who ask stupid questions to people who actually suffer from severe conditions. But here is my story: It all started 3 month...
  2. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  3. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  4. KarenNWendyn

    How many dogs does it take to change a lightbulb?

    Here’s an old favorite, well-worth repeating. How many dogs does it take to change a lightbulb? Golden retriever: the sun is shining, the day is young, we’ve got our whole lives ahead of us, and you’re inside worrying about a stupid lightbulb? Border collie: just one, and then I’ll...
  5. R

    If you have a passion for ALS advocacy & good public policies, pls join us

    Please join us for something new Feb 13-14, 2018! https://www.morethanourstories.org Last February three of us did our own mini ALS advocacy day. We had some issues that were very important to us and wanted to get in front of the government appropriations process (which is already iced by the...
  6. F

    the parrot joke

    Wanda had a faulty dishwasher that quit working, so she called a repairman. Since she had to go to work the next day, she gave specific instructions to the repairman: "I'll leave the house key under the front mat. Fix the dishwasher, leave the bill on the counter and I'll mail you a check."...
  7. J

    Male, 35, severe anxiety, fasciculations

    Hi everyone First of all thank you all for keeping this alive with so much info available. This forum is one of the most empathic and caring ones I’ve ever seen. My prayers go to the ones who have been diagnosed and to their caretakers. I am apologizing for this post in advance, I know there...
  8. L

    Bulbar ALS?

    Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing...
  9. R

    Milk of Magnesia

    Hi again, I bought the milk of magnesia today for constipation. Maybe this is a stupid question, how often should I take it. Every day? I usually only have a bowel movement every 3rd or 4th day normally. Also, I really want to read your comments on this and other problems. I do not know...
  10. KatieNBoyd

    Getting through the days

    I was looking back over the posts I had made a year ago. It seems like yesterday but at the same time it feels like forever. Next month will be one year. I am doing better today than I was say about a month ago. Weird things with family and friends continue to happen in particular with Jon’s...
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