stupid

Hi, As you can see I'm new to this forum and I'd like to say how impressed I am when I see how courageous and brave people diagnosed with this terrible disease are. Early this summer my Grandma, who had been fighting bulbar ALS for almost 2 years, passed away. I didn't get to see her when she...

I took my husband to Emory this morning, after confirming via email and phone (literally 4 times) his appointment time and PLACE! No problem, right? We get there and we are told we are supposed to be at the downtown location. Blood just about squirted from my ears! I gave the lady the name...

You Gotta Love Little Larry A new teacher was trying to make use of her psychology courses. She started her class by saying, 'Everyone who thinks they're stupid, stand up!' After a few seconds, Little Larry stood up. The teacher said, 'Do you think you're stupid, Larry?' 'No, ma'am, but I...

This stupid so called friend came to see my husband today. As if our nerves are not tore up enough waiting to go to Emory to see the als specialist. He had the gall to tell my husband he heard he had lou gehrigs, and was he going to die or what. That upset him, and then me. People are so stupid...

I have to go to Richmond tomorrow to get an echo and some other things done with my pulmonologist,I'm not looking forward to the ride to and from. Every time I have gone out and rode for any period of time, the next day I feel worse than the day before. This has been like this for the last...

Hey, I don't want to be mr scared nr so much. I'm thinking it's not ALS, but I want to share my story and see what the people with more expierence think! I have been to a neurologist to start with... The story started 4 months ago, I felt weak and had some hyperventilation probably. I been in...

Well I went to Cleveland Clinic for my second opinion I was hopeful they had more information or some other new research. Their website gleams with the promise of a "team approach" to diagnosis and treatment. What a ripoff! I saw one neurologist who kept us waiting over an hour came in said...

Has anyone ever had an experience where your PALS was living in your home... but refusing to tell you anything? What doctors or therapists say for example? My mom has completely cut off her family from her doctors. She's instructed all of them to not reveal any of her information. She's even...

I have been weak for a year and a half. It hit me all over my body during a sad loss. Weak arms, legs tongue. Just lifting my chest to breathe was hard. No lectures here but I am too chicken to do the EMG so they diagnosed me with Myasthenia Gravis because I get better with rest and with 8...

Hi Everyone, I leave to go to Mayo clinic in Jacksonville tomorrow, but I have a question before I go. Can tongue fasciculations be benign? I've had fasics everywhere, but have never felt them on my tongue. Still don't, but...... stupid me got a mirror out and barely stuck my tongue out and...