students

Hi everyone, Hope y’all are doing well! I’m starting a thread to create a space for a project that I’m working on with students at UC Davis and Greg Tanner, a PALS that works with disabilityreports.org. The goal is to create new adaptations for a lightweight pedal-electric all terrain...

My nephew wrote this for May ALS awareñess. A tribute to all of us ALS fighters... already it's may. baseball has been back for a month. the days are growing longer. sometimes, they start to blur together. it all becomes routine. I wake up in the morning and drive into work. I go to the...

Hi all, We're a team of students at Penn State University in State College, PA. For our senior design project, we're trying to prototype new software/hardware to give emotions to the artificial voice assigned to ALS patients when they can no longer speak. To design something that aids all of...

After aspirating into her lungs Friday night, Kathy was admitted to the comfort care department of the hospital, where she received the most loving, tender care by an amazing and professional nursing staff. My sister, mother and niece gathered around her bed and sang Barry Manilow songs at the...

Hello Everyone. We are MBA students and are currently doing a design thinking project to understand why Rare diseases do not have medicines. We are focusing on ALS, and have been interviewing Drug companies, Medical Doctors, Scientists, and Government healthcare professionals. eE have designed...

The 'Middle Wife' by an Anonymous 2nd grade teacher I've been teaching now for about fifteen years. I have two kids myself, but the best birth story I know is the one I saw in my own second grade classroom a few years back. When I was a kid, I loved show-and-tell. So I always have a few...

Hello, Yesterday I saw Dr Boylen at Mayo Jacksonville and he made the call that the doctor in May was not ready to make. I think I am relatively early in the progression, but I have declined since May and now have regular spasms in my hand and not much use of my forefinger. Arm is very tired...

There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...

My mother's name is Joy, and she certainly lived up to her name sake. It is with great sadness to share my mother has passed this morning peacefully at 6am (ET) from her battle with ALS (bulbar). My mother was an amazing woman. She became a school teacher and taught at Douglas MacArthur High...

I'm not sure who will all remember me, as it has been some time since my Sweetheart died in 2011. I am now over 3 years out into my new existence as a widow and mom to two beautiful little loves. I did hire a moving truck and 2 guys and moved us back into Jason and I's house. That was indeed...