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  1. P

    Scared this Holiday Season

    First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
  2. J

    ALS FEAR - Please help

    Hi All, This is a follow up post after 2 years... original thread below: Hi all, First off, I want to say thank you too all people here taking there time to answer questions for people fearing ALS. The fact that a lot of you have it and take the time out of your day to help people is amazing...
  3. T

    Worrisome symptoms - should I be concerned?

    Hi, first of all - thanks in advance for spending some of your precious your time reading my long story. I'm 25 and last 3 months of my life was the worst (so far) , fear-ridden time I have ever experienced. Everything started on the 1st of October with a constant, mild headache with painful...
  4. Chincoteaguer

    Sleeping and tube feeding

    Sibyl has been sleeping a lot these past few days and definetly losing her concentration - she picks up her white board and magic marker and then just lays them on her stomach, etc. I have been letting her sleep thru her feeding times and when she does wake up she will only let me feed her...
  5. KimT

    Multiple Medical Issues

    I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...
  6. J

    Numbness, muscle twitching, and no diagnosis? Read this.

    This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
  7. V

    Drop foot query

    Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
  8. S

    Rough time, symptomatic and looking for some help.

    *after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.* Thanks for reading this long...
  9. B

    Scared about als

    Hey guys! I’m sure you get this all the time as i can tell by the threads that are posted . But here’s my worry .... My dad died this past January from als at 68. I’m worried sick that i have the symptoms and here’s why . In February it’ll be 2 years with muscle twitches . I went and say a...
  10. C

    Right arm weakness

    I am 22 years old, with a recent history of extreme health anxiety. I recently moved back home, and started a job on night shift working 70 hours a week. Ever since I started working nights, which is the first time I’ve ever worked nights, I noticed my left eye twitches almost non stop. My...
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