story

  1. W

    Twitching and weak thumb

    Hi all, first of all English is not my native language, so forgive my English. I feel sorry for all people who got diagnosed with the terrible disease called ALS, I really feel it with you all. I have read the stickies, however it is not 100% clear for some cases for me. That's why I am...
    • WorriedBelgianGuy
    • Thread
    • als back bfs brain clinical diagnosed diagnosis emg family hope mri neurologist questions scared scared of als shaking story stress swallowing test tests twitches twitching weakness worried wrong
    • Replies: 5
    • Forum: Could this be ALS?
  2. D

    Very Aggressive ALS

    My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care hospital where has spent two weeks...
  3. I

    Loss of lateral movement of left pinky finger

    Hello everyone, I'm a 29 yo male and I would be very grateful if anyone can share their experience and knowledge since I'm having symptons that are worrying me the last days. I've read all the wonderful stickies, I don't want to waste anyone's time writing another classic BFS story. But from...
    • IvMa6years
    • Thread
    • als bfs finger fingers hours improvement last days movement pain questions reading story testing tests twitches weakness
    • Replies: 10
    • Forum: Could this be ALS?
  4. W

    April 2017 Diagnosed

    Greetings, First I want to say “thank you” to all of you past and present that have posted on this forum. Although I’ve only been a member for a few months now, the information and encouragement you all have provided has helped. Was diagnosed April 15, 2017 with ALS. The below is the story...
    • WeirdTim
    • Thread
    • als angry ankle bipap book diagnose emg exercise eye free headache lung capacity muscle muscle twitching neurologist neurology pain story student support symptoms tests twitch twitches twitching vitamins wanted weakness wrong
    • Replies: 33
    • Forum: Could this be ALS?
  5. A

    Aussies Raise $4.5mil for MND

    We had the annual Big freeze at the G yesterday before an AFL match. The federal government matched the donations 1 for 1 & we raised $4.5mil in a day! No Cookies | Herald Sun The Fight MND charity has now raised $20mil over 3 years & funded 8 new research projects in Australia. Can't wait to...
  6. C

    First Post - Concerned

    Hello all, First, I must say this is my first post here and am thankful for the insight all of you provide. I have been reading posts here for a few days, looking for situations similar to mine and can't quite put a pin in it. I'm not looking to be diagnosed on the internet and understand...
    • Clint90
    • Thread
    • abdomen ankle anxiety bed concerned cramps diabetes diagnosed fatigue fingers muscle muscle twitching neurologist pain ring finger running sleep spasms stats story symptom tongue tremor twitch twitching weakness work wrist
    • Replies: 7
    • Forum: Could this be ALS?
  7. A

    Hi,my story until now

    Hi, italian user here,35 yo male,sorry in advance for my bad english,have a long history to tell. -My story starts with a big cramp in my left calf while i was running last day of february. after that,i tried few times to run again but it started always to pain a lot;same period started a...
    • Alessandro 2
    • Thread
    • brain cramps denervation dysphagia fasciculations foot lift movement mri muscle muscles neurologist pain running sporadic story symptoms weakness worry
    • Replies: 5
    • Forum: Could this be ALS?
  8. P

    Newley diagnosed at 26 years old and have just found out I'm pregnant.

    Hi everyone, This is my first time posting and am looking for any advice relating to pregnancy with a ALS diagnosis. I started getting my symptoms 2 years ago when I was 24. It started in my left hand and eventually the constant twitching started in my arm. I have had numerous MRI's, blood...
    • Pdotmummy
    • Thread
    • advice als arm breathing children confused denial diagnosed diagnosis early emg guilt heart life mri neurologist pressure progression story stress symptoms twitching unknown work
    • Replies: 2
    • Forum: Newly diagnosed
  9. M

    Pulling rank

    Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...
    • Manhattanite
    • Thread
    • caregiver caretakers conversation dad denial feeding hospice night nutrition questions sleep story vent voice wanted women
    • Replies: 17
    • Forum: Current caregivers
  10. H

    Twitching/Atrophy Doesn't Always Mean ALS

    Hi! Been a while since I've posted here, but I have a story that many people can relate to when it comes to panicking/getting anxiety towards ALS due to symptoms. For me, it all started back in October 2014. I noticed some twitching in my right arm, looked on the internet and automatically...
    • hunterross258
    • Thread
    • age als anxiety arm atrophy back brain clinical diagnosed dihals donations hope meds story symptoms tests thumb twitching
    • Replies: 4
    • Forum: Could this be ALS?
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