Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
I have been doing what I can the last two years or so. And based on my previous posts, I can clearly see that my worries were extreme at the time.
Fast forward until now. These past few weeks/months, I have had some "heaviness" when walking in my right foot and leg.
I have a terrible habit...
I was just wondering if anyone here had experienced similar symptoms to what I have and have managed to receive a diagnosis for their condition.
Approximately 3 years ago, I started noticing tremor on my left hand. I had difficulty holding my phone still to take pictures. At the same time...
Well, I went 2 weeks ago to see the ALS specialist and he gave me an official ALS diagnosis. It’s been really hard to accept/understand this. My whole life is falling apart, I live alone and far from my family, so I decided to go back home to have more support and also because everyone is super...
My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset...
Hi everyone - I am reluctantly posting again after doing my best to stay away from this website. I stayed away for the most part since my last thread but have glanced every now and then. I am back to say that I know not all is well. I am twitching everywhere and my symptoms regarding bulbar...
I joined this forum last year then forced myself to stay away to try and control my anxiety. I received a very helpful response to my question about symptoms in my leg, a response that eased my mind considerably, as I could still do many of the things that were mentioned. IIRC they were...
For the last 4 months my brother has been having 6 weekly IVIG treatments to rule out possible MMN, and seemed to be responding - his bicep which had atrophied is growing and he's regained use of a finger that had stopped working.
However in the last few weeks he's developed a new...
My husband has been diagnosed with FTD and a few months later we received a diagnosis from Barnes in St. Louis that he has familial ALS. His dad died 20 years ago with this horrific disease , and his sister died in 2014 of ALS. My husband has the repeated gene C9orf72 gene which links ALS and...
I just switch unfortunately the forums from DIHALS to thi one:(
Doc`s told me 99 % MND and with hypperfeflexia the chances for something else are pretty slim...
So a question
I have marked atrophy in my both hands and very very heavy in the tongue, also some in shoulder.
What to expect...