stem cell

  1. H

    Father was just given “probable diagnosis”

    Hi and thank you in advance for reading- My dad is 64 and overall is a healthy, active person. To say we are devastated is an understatement- it seemingly came out of nowhere and has turned our world upside down. He is scheduled for a 5 day evaluation at the Mayo Clinic in Rochester at the end...
  2. M

    Stem cell therapy experiences

    Did anyone prove any cell therapy? If so, could you please share your ecperience? I am thinking of taking the Wu Medical Center therapy but I would like to hear about some PALS that had an experience on it. many thanks. Bests
  3. A

    Corestem's Neuronata-R

    I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...
  4. gigem

    Radicava or NurOwn stem cell trial?

    Assuming you had access to both, and cost was not an issue, which would you choose? Radicava or a 50/50 coin flip as a participant in the NurOwn stem cell trial (placebo or actual treatment)? You can't do both. My wife started Radicava last week, but is still haunted by the PR from BrainStorm...
  5. S

    Cns10-nps

    Hi all, Has anyone participated in Cedars-Sinai's CNS10-NPC stem cell study? My husband is strongly considering participating in this study and his Neurologist has been pushing him to do it, but we are obviously concerned about possible outcomes. It sounds like most participants have made it...
  6. A

    family diagnosed. very scared

    hi everyone. i'm writing this with tears in my eyes and i'm reaching out for support. a family member was just diagnosed. i'm terrified, scared, in denial. i don't understand what is going on and i keep breaking out into sobs as i walk down the street. do you recommend a second opinion? what...
  7. K

    Re concerned after having difficulty walking up steps

    I was diagnosed with Benign Cramp Fasciculation Syndrome in February 2017. I started having severe cramps, large twitches, and many fasciculation's in the summer of 2016. I also started stumbling and dropping things and having difficulty typing. The dropping things and typing difficulties were...
  8. P

    Bulbar ALS - treatment options?

    Hi everyone, My mom was recently diagnosed with Bulbar onset ALS. We are desperately trying to find some alternative treatment options besides her regular medication. I read some previous threads with really good information but wanted to check again if anyone had recommendations regarding...
  9. P

    Stem cell therapy in China?

    Any one have any experience with this in Beijing, Wu Med Ctr? Looking into going, was hoping someone else had info on efficacy Thanks☺
  10. S

    Stem Cell Clinics

    Have any other patients experience with stem cell treatment for ALS at Dr Steenblock's clinic or Dr Bryn Henderson's clinic both in LA in the USA? Thanks Steve
Back
Top