stats

  1. B

    First to go, voice or ability to swallow?

    Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
    • Brandi
    • Thread
    • ability breathing breathing issues clinic confused diagnosis dysphagia early feeding feeding tube helpful oxygen problems research respiratory sleep speech stats swallow tongue vision voice weakness
    • Replies: 28
    • Forum: Could this be ALS?
  2. S

    Tips and Tools for in home helpers

    I am looking for some ideas for binders or any tools that I can use to organize for the aid, nurses, and volunteers that will be coming into my home to help out. I am typically a very organized person but for some reason, I can't figure out what will work the best. A folder for each group...
  3. C

    First Post - Concerned

    Hello all, First, I must say this is my first post here and am thankful for the insight all of you provide. I have been reading posts here for a few days, looking for situations similar to mine and can't quite put a pin in it. I'm not looking to be diagnosed on the internet and understand...
    • Clint90
    • Thread
    • abdomen ankle anxiety bed concerned cramps diabetes diagnosed fatigue fingers muscle muscle twitching neurologist pain ring finger running sleep spasms stats story symptom tongue tremor twitch twitching weakness work wrist
    • Replies: 7
    • Forum: Could this be ALS?
  4. M

    Specific question regarding pain and twitching

    I've spent some time looking at some threads, etc. but wanted to pose a question or two. My issue started a few months ago (Jan) where I was at lunch and a glass slid from my hand which typically I wouldn't think too much about. I then got home and poked around and did some research as I...
    • MANinCT
    • Thread
    • age als arm back clinical confusing emg friend ice muscle night pain progression questions research shoulder stats symptoms symptoms of als tests twitching wanted weakness worried worry wrong
    • Replies: 20
    • Forum: Could this be ALS?
  5. JennyC

    Need help understanding results?

    My mom had an appointment at the clinic today and I wasn't able to go. My Aunt sent me the page with her stats on it but I don't understand some of the results and mom won't be strong enough to fill me in until tomorrow. So if anyone can interpret I would appreciate it. The results of her...
  6. R

    Thank You

    First - I have read all of the important documents at the top of this forum. I am extremely appreciative to anyone who takes the time to read and respond and I wish everyone on here the very best. I am going to outline my symptoms, testing, and stats simply to make this quick and easy for...
    • rhlove24
    • Thread
    • ability atrophy back bed diagnosed diagnosis documents emg female headache headaches immediately lyme mnd mri myasthenia gravis nausea neurologist night questions scared shoulder stats symptoms testing tongue twitching ultrasound unsure urgent vision weakness work young
    • Replies: 10
    • Forum: Could this be ALS?
  7. M

    Can ACV mode bring Bronchospasm. if used for long ?

    Can ACV mode bring Bronchospasm, if used for long ? Mom has been in the vent since mid February. For last 2 months or more, she has been in ACV mode. Earlier she was in V-SIMV & PACV modes. Active settings For about a month or more, she has been experiencing Bronchospasm. She feels like...
  8. A

    Swallowing problems plus cough / postnasal drip

    Hi there Several weeks ago I had a problem swallowing a piece of food - it was like I was unable to start the swallow reflex and the food stood at the end of my tongue for a second or two. That scared me and to be honest ALS was the first thing to come to my mind (I knew a person who had ALS...
    • albin
    • Thread
    • ability age als bulbar bulbar als choke early fasciculations food medical nose problem problems questions reading reflex respiratory scared stats swallowing swallowing issues tongue tongue fasciculations video worries
    • Replies: 2
    • Forum: Could this be ALS?
  9. LeprechaunSean

    Six Month Lunasin Report

    Six Month Lunasin Report Started on the Duke University\McDuff regimen on Aug 15\2015. Weight: 181 lbs FVC: 46% ALS FRS: 25 For the previous year (Aug 2014 - Aug 2015) I lost about 3 lbs on average between visits to my ALS clinic, so about 9 - 10 lbs for the year. My FVC declined...
  10. Atsugi

    Life Expectancy and its Variables

    I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed: In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...
    • Atsugi
    • Thread
    • ability als alsa bipap breathing bulbar bulbar onset death diagnosis early familial familial als increase morphine muscles nutrition onset peg person with als pneumonia respiratory riluzole statistics stats swallowing symptoms tracheostomy young
    • Replies: 13
    • Forum: General discussion about ALS/MND
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