ssdi

I would like to do an informal Poll and see if there is a discrepancy in the experience of PALS and CALS with the application for SSDI and if it is related to the state in which they reside. We reside in South Dakota and applied over the phone. We received notice of acceptance within 10...

Went to Hopkins today. That was a complete waste of time. Got a Rilutek prescription. My right arm and hand are completely useless. My left arm and hand are weakening. I've fallen twice and have an unsteady gait. I can't wash my (very short) hair. Brushing my teeth takes all my energy. I can't...

(sorry for the intrusion my canadian PALS) As Washington debates health care reform, I urge you to contact your house representative and senators. We need to spread the word about our medical needs (tragedies) and influence the debate. Below, I have included a copy of an email I sent. Please...

let me start by saying hello ,ive spent time reading on this forum before i had the nerve to write, i shouldnt have waited as there are so many caring and down to earth people on this forum,thank you all fot what you are doing. well,i am a 55yr old male who has recently got an ALS Dx back...

[B]well, we went to the ALS clinic at OSU yesterday. Dr Kolb said based on the information and the examination, and previous test results, that the initial diagnosed is Als, during the course of a several hour examination and add'l testing, he came to this conclusion, ruling out several other...

Hi everyone. I am so happy to be posting on the Stories of Hope Forum! As most if not all of you know, it is so much easier to give rather than receive help. Society sure has us programmed! My DH was diagnosed with ALS 8/07, with symptom onset spring of 05. He worked for as long as he...

My husband has been diagnosed with ALS. I need some opinions about this disease. He is currently drinking creatine and protein drinks. It seems to help him. Do other vitamins work or not work? His legs are strong but he has extensive loss in his arms and shoulders. We are waiting for the...

I'm getting a lot of mixed messages, different stories, and need some help from those who have experience. Progression is picking up speed and dh was recently let go from his job, etc. etc. All of that is too long to go into. It is my understanding that with the ALS diagnosis he would be...

A question... I was diagnosed in August and am still working full time. The disease is progressing and my speech is getting really thick, my right arm is at about 20 percent and my legs are getting unsteady. My bosses say I can stick around and get paid for as long as I want. However, I don't...

I was recently diagnosed with ALS last month on July 10, 2006 with hand and arm onset. I would like some thoughts and opinions about how long I should continue to work full time before applying for social security disability. I work in a public health dept as a program manager for HIV AIDS...