speech therapy

  1. T

    Steroids and ALS

    Hello all, I'm new the forum, but my mom posts on here (NHAMM) My grandmother was diagnosed with PBP onset ALS about 1-2 months ago, but we believe she has been suffering since last summer. I'll give a brief story. It started with her speech, wasn't bad, but you could just tell it was different...
    • tiffanyleigh0212
    • Thread
    • als dad denial diagnosed eye family feeding feeding tube information neurologist onset pbp problems rilutek speech speech therapy steroids story surgery swallowing symptoms therapy wrong
    • Replies: 2
    • Forum: General discussion about ALS/MND
  2. K

    How much of Dad is still there?

    My Dad doesn't seem to be too "with it" most of the time. He gets "confused" about things, like what day it is. For example, he went out to the car and was ready to go to my sister's for Christmas Eve, BUT that was FOUR DAYS AWAY! He has done things like this on more than just that occasion. He...
    • KinzaDAF
    • Thread
    • bipap brain bulbar catheter christmas communication communication device confused dad dementia denial depression diagnosed diagnosis early night please help sad shortness of breath sleep speech speech therapy swallowing therapy wanted
    • Replies: 19
    • Forum: Current caregivers
  3. Andy2020

    Breathing problems with my Dad?

    I am hoping some of you experts can help me figure out what to do for my Dad. Here is his quick story. My Dad started going to the YMCA in 2007. He would work out 6-7 days a week for 1-2 hours. He was in great condition. In January 2009 Dad suddenly had his shoulders and neck curving...
    • Andy2020
    • Thread
    • advice back blog breathing breathing problems chair confused dad decline diagnosed diaphragm drugs family heart hours ice immediately joelc night oxygen physical therapy problems speech speech therapy story therapy tracheotomy ventilator wanted work wrong
    • Replies: 15
    • Forum: General discussion about ALS/MND
  4. P

    PALS & caregiver at odds

    I've started this post a million times, but decided against a million and one. Finally, I decided to create a second anonymous screen name so this post wouldn't be searchable using the same screen name I use everywhere on the web, including here! My mother is the primary caregiver for my...
    • postinganon
    • Thread
    • als angry caregiver dad diagnosis equipment family father frustrated medical mnd mobility pals physical therapy problem sleep speech speech therapy therapy van worried worry
    • Replies: 5
    • Forum: Current caregivers
  5. BethU

    Bulbar symptoms recap

    It was either this or do the taxes. Hopefully somebody will find this useful. List of Bulbar-onset ALS symptoms over 3 years. ? means I’m not sure it’s connected to ALS or FTD. ** means it’s still continuing. These are not in accurate sequence, but generally by year. Not sure about the...
    • BethU
    • Thread
    • als als symptoms atrophy balance bipap bulbar bulbar symptoms chair choking cough assist driving dry mouth eating emotional lability exhaustion fasciculations feeding finger food foot ftd headaches heart insurance lift meds night pneumonia power power chair problem problems reading reflex respiratory respiratory failure running seizures shortness of breath sleep slurred speech speech speech therapy stupid surgery symptoms tests therapy thumb tongue tongue fasciculations twitches twitching walker weakness work wrist wrong
    • Replies: 10
    • Forum: General discussion about ALS/MND
  6. R

    doctors and clinics how they help

    since my husband's diagnosis it doesn't seem like the dr has much advice or suggestions, I read about several of you who go to MDA clinics we are registered with one the only contact we get is a monthly news letter, the dr say's they can help later with the things we will need. I hate feeling...
  7. K

    Speech Therapy for Trach Patients

    Just wondering. Did any of you with a trach undergo speech therapy? Is it really necessary?
  8. M

    Any guidance appreciated

    First, I would like to say thank you to all of the helpful postings I have read in the last couple of weeks. I happened upon the site when I looked up hyperreflexia and have been visiting everyday since. My only knowledge of ALS previously was of one of my favorite high school teachers who was...
    • mimi0727
    • Thread
    • als ankle back balance chair children confusing driving early emg friend health helpful hyperreflexia improvement lou gehrig's disease medical meds memorial movement mri muscle muscle wasting muscles neurologist neurology paralyzed progression scared shoulder speech speech therapy surgery therapy tongue twitches voice weakness
    • Replies: 12
    • Forum: Could this be ALS?
  9. M

    Now What?

    So, it started with my mom's right hand, a month later moved to her left. We've spent over a year at the neurologist's office having test after test and he "thinks" it may be ALS but it probably isn't, he just isn't sure. Last week she developed aspiration pneumonia, this week they put in a PEG...
    • meikela
    • Thread
    • advice als ball denial diagnosis hope medical neurologist peg pneumonia problem scared sleep southern california speech speech therapy test therapy treatment worried wrong
    • Replies: 1
    • Forum: Current caregivers
  10. J

    Sorry I left...

    Hi everyone! Sorry I left for a while; it's been so hard. My family, for some reason (something to do with my husband), have been keeping their distance from me...I've been struggling to regain my emotional strength because of it. All my life I've been there for all of them; nursed my father...
    • JenniLee
    • Thread
    • cramps depressed diagnosis emg exercise family father hip hope life running sad shortness of breath speech speech therapy surgery tests therapy twitches wanted worried
    • Replies: 6
    • Forum: General discussion about ALS/MND
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