My husband was diagnosed with primary progressive aphasia on 6/28 after I began noticing first a change in the tone of his voice and the slurred speech and it seemed difficulty finding the words. We saw a local neurologist and received this diagnosis then to UPMC Pittsburgh where he was...
My wife started mild speech problem about 1 yr ago--it has now progressed to significant slurred speech and has swallowing difficulty and other issues. She has seen a neurologist and several ENTs that did nothing other than send to speech therapy. In surfing the internet for slurred speech i...
Hello, I have just found this forum and I am hoping for some advice based on all the experience out there. Apologies for the lengthy post....
My husband, who is 45, fit and well and, by the way not a worrier about health issues, has had mild swallowing problems for just about a year and which...
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Wow, I joined this site ages ago but the powers that be would never fully authorize my account so I could ask the millions of questions I have. And suddenly today, I can post?! This is my first post (showing my Captain Obvious badge here). So, hello!
I'm 32 years of age and all this mess...
Sorry I haven't been in touch but I was busy moving into an assisted living facility.
I moved in late Monday and missed their Thanksgiving dinner which they had on Monday. So no turkey, stuffing, sweet potatoes, cranberries, etc. And that is one of my favorite meals. Had to settle for an open...
Hi all,
I am new to the ALS group, recently my dad was diagnosed with ALS in October 2011 but may be it started a year back when he used to feel dizzy all the time. The doctors diagnosed it as problem with ear fluid, since he had difficulty in hearing on right side. Infact the dizziness stopped...
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Hello
I just wanted to ask for some tips on things I should ask the ALS Society rep when she meets with my family this Friday. I am at the point of feeling overwhelmed by questions and concerns and know I need to take it a question at a time. What are key things I should ask about?
I...
Hi there, what an immense amount of knowledge you all have and I really need some answers that we cant get from my mums neurologist.
My mother was a fit and active 72yr old, about 8 months ago her speech started to fail, she got more and more slurred till more recently in about the last month...
My Road Thru ALS
Gordon Brown
August, 2001
Started experiencing falls. Had a few minor falls throughout the Fall of 01’. My legs felt like they were getting stiff.
December 2001
Had my first serious fall just before Christmas. Got out of the car and tripped over my feet. Couldn’t...
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I am new to this thread. Last month my dad diagnosed as he is suffering from PBP. This all started with slight trouble in speech. Now his speech is not clear (most times), sometimes problem with controlling saliva, little difficulty in chewing, facial muscle weakness. Apart from these he is...