We're having a serious problem. Jay is on a Medicare Advantage plan. An attorney was recommended to us through the als association in our state. Supposedly this attorney can get Jay on Medicaid even though we are over the limit. And the cost to do that is close to $10,000.00. Jay has a...
ALS disease includes common symptoms such as muscle weakness throughout the entire body. When your fingers and hands get weaker then how can you communicate by phone? I cannot pick up a handset and I cannot press the telephone keypad at all. I had to rely on my caregiver for each phone...
accessibility
als
caregiver
communication
finger
fingers
information
media
movement
muscle
muscle weakness
speakerphone
support
switch
symptoms
weakness
wheelchair
This is so hard right now. Not sure if it's from medications or the disease but Jesse has become paranoid and delusional. He wouldn't let me give him a suppository yesterday because I "didn't do it right" and insisted I call Hospice nurse to do it although I had done it many times. When she was...
Well, sort of... Help!
The RT came to my house this morning with my new Trilogy respirator. This has been in the works for 3 months so I was glad to see him.
"Mark, have you ever worked with a Trilogy before?"
"No."
"But you've been trained on it, right?"
"Oh, yeah."
"Are you familiar with...
A dear friend in the UK has trouble speaking and being understood through his breathing machine. His son, a stagehand in London, fixed a CONTACT MIKE to his Dad's throat (tied with a shoestring and the contact enhanced with vaseline) and rigged that to a small electric guitar amp. Suddenly our...
Hello everyone, here is a link to a video that I was sent by my SLP. The fellow in the video could be me, I have almost the same set up for talking on the phone. For anyone with speech problems all you need is a speech device with speaking software and a speaker phone and you are all set. I...
Hello everbody, I was so fussed up about the goat today that I forgot to tell you about my successful telephone conversation on Friday. I was home alone sitting in front of my computer playing around with E-triloquist when wouldn't you know it, the phone rang. Now usually I just let my former...