spastic paraparesis

  1. P

    Spastic paraparesis question

    I was recently told by the neurologist that he thinks I have hereditary spastic paraplegia, I was wondering if anyone could tell me if this comes in flare ups/exacerbations. Because I can't find anything about that question. Thank you in advance.
  2. H

    Spastic Paraparesis

    Hi everyone, I just wanted to see if this is the correct place to post? I have been extensively tested in the UK for ALS. EMG clean, all other testing normal. I have had two neurologists give the same opinion and the findings are "Spastic Paraparesis, cause unknown". You will see from my DIHALS...
  3. Zaphoon

    Konzo, another umn disease

    I found this article to be very interesting. It seems a cause can be found to a motor neuron disease, after all! KONZO, AN EPIDEMIC UPPER MOTOR NEURON DISEASE STUDIED IN TANZANIAW. P. HOWLETT1, G. R. BRUBAKER2, N. MLINGI3 and H. ROSLING4 + Author Affiliations Summary An epidemic of...
  4. B

    Developing Bulbar Symptoms

    Hi, Although as yet I have no formal diagnosis (beyond being told that I have spastic paraparesis caused by the premature aging / death of my upper motor neurones), my neuro has advised me to go back to him as soon as I display any other symptoms. As I'm not the sort of person to want to go...
  5. B

    Where do I Go From Here?

    Hi, I am new to the forums but have been viewing for some time since my diagnosis was underway, but now I feel completely confused after my latest neuro appointment. Grateful for any insights you may have. I have been seeing my neuro for around 2 years now and have undergone the usual battery...
  6. Al

    Specimen collection study.

    Here's the chance for those that complain research is slow, to step up and be a part of something. AL. Twenty-one NEALS ALS centers across the U.S. are seeking individuals to participate in a specimen collection study. The purpose of the research study is to collect blood (plasma and DNA)...
  7. C

    Questions from Newly Diagnosed

    Hi all, I'm 28 years old and newly diagnosed with spastic paraparesis. I have been having symptoms for a very long time and only recently saw several neurologists (including a neuromuscular specialist) because it was getting difficult to function and was given this diagnosis. Things really...
  8. olly

    papaplegin mutations?

    Published online before print September 17, 2008, doi:10.1212/01.wnl.0000319700.11606.21) This Article PubMed Citation Articles by Brugman, F. Articles by van den Berg, L. H NEUROLOGY 2008;71:1500-1505 © 2008 American Academy of Neurology Paraplegin mutations in sporadic...
  9. Just J

    Neuro offers possibilities...

    My husbands mobility has declined for 3 yrs and now uses a cane to walk. Sitting is a problem too and needs to lay down for most of the day. Until now we had no possibilities of a diagnosis. It just felt like a waiting game. Anyway, 2 weeks ago we went to new Neuro at Johns Hopkins...
  10. Z

    went to neuro appointment

    Hi,i went to new neuro tht my current neuro refferd me to bcoz new neuro is prof and expert in his field,here is his website of the hospital,his name prof p.f.chinnery. http://www.cnmd.ac.uk/researchgroups/patrickchinnery anyway he agrees with me tht my condition has progressd rapidly,i wrote...
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