sole caregiver

:roll:My husband is making me crazy! He has decided that he wants to be a Vegan so no meat, no eggs, no yogurt, no oils, no butter, cream milk...ARG! This is in response to my dad's heart attack and a movie that we saw about cardio health. He is worried about a heart attack--really?! So...

My mom refuses to go back to her ALS doctors, saying they don't do anything for her. I believe she still sees her GP. She has no muscle function at all from the neck down. She can still eat a little, and talk very little -- it is extremely difficult to understand her. She's started to lose...

Since 1997 my husband (now 70 yrs. old) battled a series of strange symptoms which weren't definitively diagnosed until he became a patient in the Undiagnosed Diseases program at the NIH in Nov. 2009. The diagnosis is frontotemporal dementia with motor neuron disease closely related to ALS...

As we approach month nine post diagnosis, I am overwhelmed with fatigue. I have been the sole caregiver. We've had a morning CNA, but the home healthcare agency keeps changing them up. Today, the case manager acted like she might not be able to get help in here for the next four to five days...

My Road Thru ALS Gordon Brown August, 2001 Started experiencing falls. Had a few minor falls throughout the Fall of 01’. My legs felt like they were getting stiff. December 2001 Had my first serious fall just before Christmas. Got out of the car and tripped over my feet. Couldn’t...

I was diagnosed with ALS in Nov '09 and seem to have gone down hill since then. My legs are weak and I stumble and fall often (especially when tired). I am currently using a cane when I don't have an arm to hold onto but am transitioning to a walker this week when I am out of the house. My...

My husband was diagnosed with ALS Feb 01/ he passed away July 30/2003. There is not a day that goes by that I don't think of him or the disease. This was a very difficult time and during this time I was with a ALS Chat Group that was fantastic. This group gave me a lot of medical advice...

My brother has had ALS for 7 years. It has progressed slowly, His wife has essentially been the sole caregiver for this time - for the last 2 or 3 years he has been completely disabled. They have bankrupted themselves hiring home health aids. Does anyone know of any care giving agencies in...

Here's my list of Do’s and Don’ts for Friends of the Caregiver 1. Bless you for NOT giving me advice unless I’ve asked for it. (OK, I’ve been guilty of advice-giving in my time but I’ve learned a lot in these last two years!) Be my friend and not my health care professional, I’ve got plenty...

My name is Denise. I am sole caregiver to my husband Ronald who has been diagnosed for 5 years with ALS. His was bulbar onset. He is now total care. He amde the choice for no PEG or vent. or other life support. So needless to say it has been hard to deal with at time. He is veteran, 58 years old...