sole caregiver

  1. F

    What to expect during late stages?

    Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...
  2. L

    Today was a good day

    I feel as though I have started coming to terms with the loss of my beautiful Mother. Doing the ALS walk for Mothers Day meant so much to me. I was very emotional all day but it helped to be surrounded by people who understood. One of the the hardest parts of being the sole caregiver to my mom...
  3. blufftongal

    Still in shock

    My husband of 50 years has just been diagnosed with ALS. He has had symptoms the last 3 years. First started with fasciculations. I truly believed it was nothing. At that time doctors still had no true diagnosis. These last 3 months his symptoms are getting worse. I was so much in denial I...
  4. KatieNBoyd

    Perspective advice needed

    An interesting occurrence has me reflecting on my day. I have been taught to make my amends promptly when I am in the wrong. But, I have also been taught not to have to bow down and be stepped all over. So, I am not sure how or if I will properly word this in order to make myself or my question...
  5. M

    If it isnt 1 thing its 20..so frustrated

    so it isnt enough that my mom has a terminal illness just a mere 4 months after my grandmother passed away. We cant seem to get any help at all and I am feeling more and more that we are not in the right place or looking in the right places for answers... Mom spent the past 14 years caring for...
  6. V

    Can one person control a patient lift?

    My husband will soon need a patient lift for transferring from bed to commode to power chair, etc. He weighs over 200 lbs. I am his sole caregiver at this point. I'm trying to decide whether to get an electrically powered lift or a regular hydraulic lift. But the most important issue is...
  7. M

    overwhelmed

    I'm new to this site, so I'm hoping I'm doing this right. I've been at this sole-caregiver thing for quite a while. My husband was diagnosed in 2004 after he lost use of his hands and arms. I became the stay at home caregiver. We live in a very rural area and don't have access to the many forms...
  8. Barbie

    Respite Coming!

    I had to share a little good thing! I am the sole caregiver for my husband for 5 years now--the last 3 in a PWC. I have not had a night or day off in all that time for many reasons which I am sure most of you can imagine. My birthday is in November and a good friend of mine is also...
  9. K

    New CALS new to Forum

    Hello all, just a quick intro. I have recently become sole caregiver to my Mom who was diagnosed this past January (about 2 years into it). Feeling overwhelmed after only 3 months, but happy to see that there is a supportive community. I have briefly read some posts and learned so much I...
  10. M

    need caregiver advice

    My uncle has recently been diagnosed with ALS. My Aunt is his sole caregiver and it is taking a toll on her. She works full time and has had to take over all of the household chores (inside and out) as well. She feels guilty when she leaves for work that he is stuck in a chair all day but a...
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